Mataya Grace McLeslie

 Mataya’s Story

“She knew nothing but the unconditional love of her family.”

 Mataya Grace McLeslie, Trisomy 13, 10/21/2013 – 10/27/2013, Newport, WA

 Mataya Grace McLeslieOur little Mataya was diagnosed at 22wks gestation with Full Trisomy 13. At that moment, we placed our little girl’s life in the hands of our maker. Letting him decide how long she would be here with us. Through Level II ultrasound it was determined that she was the severe end of the spectrum. Having 3 major heart defects, a large ASD, large VSD and CoA. She was also diagnosed with holoprosencephaly and bilateral cleft lip and cleft palate. We were told that we shouldn’t expect her to make it to term or to be born alive. We were given very little hope for our girl. However, we pressed on, hoping and praying, and she grew and thrived in the safety of my belly. On Oct. 21st, 2013, at 39wks 3days we went in for one last ultrasound to determine if she was head down or breech. We discovered that she indeed was breech, and our doctor suggested a c-section because he did not want to add to the trauma of the situation by having me try to deliver her naturally. We scheduled her arrival for October 24th so she could share her daddy’s birthday. However, she had plans of her own. A few hours after scheduling our c-section my water broke. Evidently, she wanted her own special day. At 7:30pm on Oct. 21, 2013, Mataya Grace was born…..PINK and CRYING!! The sweetest sound we have ever heard. Because of the severity of her heart defects we decided to withhold any life saving measures and just enjoy whatever time we were given with her. Mataya came home with us the day I was discharged. Breathing on her own, eating from a bottle and sucking a pacifier (despite her severe clefts) and acting like a healthy newborn. She did everything we were told she would never do. She spent 4 days with us at home. Always in the arms of someone who loved her. On Oct. 27th, 2013 she passed peacefully from her daddy’s arms and into the arms of Jesus. We thank God for every moment we spent with her. We lived a miracle. Her life was miraculous and beautiful. She knew nothing but the unconditional love of her family.

amanda.mcleslie@hotmail.com