Nora Rose Yusko
…”She made a brilliant and unforgettable impact on this earth, and touched countless lives all over the globe.”
Nora Rose Yusko, 04/17/2012 to 06/03/2014, Trisomy 18, Cincinnati, OH
On April 17, 2012 Nora Rose Yusko was born. Against all odds, the sound of her first cry filled the room and filled our hearts with hope and extraordinary love. As I held her close and looked back into her beautiful blue eyes – I finally began to understand the meaning of true unconditional love. There were conditions and a serious diagnosis attached to this precious baby (trisomy 18) – a scary, unfamiliar, somber, life limiting condition that ran the risk of completely breaking my heart and forever changing life as I knew it. But to hold her, to kiss her skin, to breathe her in and absorb the absolute wonder of her mighty little life – none of those risks mattered. She was perfect in my eyes and I wouldn’t have traded her for anything in the world.
“These babies don’t typically live long…” the harsh and foreboding words of doctors, hospice affiliates, and counselors echoed in the dark recesses of our minds. In blind faith, we put one foot in front of the other, taking special care to treasure each and every moment. The days turned into weeks, the weeks turned into months and the months turned into years. As time went on – those words lost their power over us. In many ways, Nora was a typical baby who was quite able to communicate with us, non-verbally expressing her likes and dislikes. Of course she had her developmental and physical delays – but just as with everything else, Nora was going to write her own story and do things her own way. She loved to play or cuddle with her cool big brother Gavin and her sweet big sister Greta. She truly enjoyed being “just one of the kids”. Taking multiple baths (“baffs”) a day with Mommy or Daddy in the jet tub was her all-time favorite thing to do. She was likely the cleanest baby there ever was! We started off with taking her on walks in the neighborhood and then even had the opportunity to take her on two vacations up North with us. For just over two years (777 days), God lent us this beautiful little soul. She made a brilliant and unforgettable impact on this earth, and touched countless lives all over the globe.
The sunny days that we hoped would never end clouded over in late May of 2014. We spent 15 formidable days in the hospital when Nora’s stomach inexplicably flipped. Emergency surgeries, blood transfusions, surrounded by towers of medical equipment and a team of phenomenal doctors and nurses in the CICU – there she was. Despite all best efforts, her time with us drew to a close in the very early morning hours of June 3, 2014. She left this world just as she entered it — surrounded by those who loved her fiercely. We are forever grateful for the gift of knowing Nora Rose Yusko.
“I knew you before I formed you in your mother’s womb. Before you were born I set you apart and appointed you as my prophet to the nations.” (Jeremiah 1:5 NLT)
This is our journey from the very beginning: www.noraroseyusko.com