Presley Crawford

Presley’s Story

“He stole my heart”

Presley Crawford, Trisomy 13, Salem, IN, 10/30/2012 – 2/24/2013

Presley CrawfordI am Presley’s great Aunt that helped with his care.  Presley’s mommy was told at the first ultrasound that something was wrong.  She was sent for testing and they found out he had Trisomy 13.  They gave us NO hope at all.  Needless to say on October 30, 2012 he entered the world, strong, and beautiful.  He stole my heart.  The doctors said he would only be with us for a few minutes to hours but 4 hours passed and he was starving so they put a feeding tube in.  He came home 7 days later.  He was a good baby, hardly ever cried and loved eating.  He no longer had a feeding tube when he came home.  Even with a cleft lip and pallet he loved eating out of his special bottle designed just for this.  He was doing great with just some little bumps here and there.  He liked to hold his breath.  On January 22nd he had lip repair surgery.  He struggled coming back around but would have if given the time and treatment.  The doctors quickly gave up on him and talked his parents into believing it was the trisomy taking over.  He gained his wings on February 24, 2012.  These babies are simply amazing and touch the hearts of so many.  You can see his page at:

https://www.facebook.com/Trisomy13AwarenessPresley