SOFT Times Newsletter

The SOFT Times Newsletter – A newsletter for families 

with children who have chromosome disorders

[button color=”#ffffff” background=”#1a375d” size=”large” src=”/?page_id=7151/”]Go to Newsletter Library[/button]

What’s in the January 2015 Newsletter?

The President’s Corner
16 Years of SOFT Utah Christmas
SOFT of NC News
In Memory of a Special “Little Lady”
SOFTly Spoken: “More or Less”
Hello, my name is Simon
Moments to Remember
SOFT moms get together in Chicago

SOFT of Utah Conference Committee
     needs Artwork for the Conference
Christmas Cards from SOFT families:
The Cooks, Kaufman/Kubena, Careys
Barnes’, Stockmans, Krotzers, Donohues,
Cantrells, Marohns, Wagners

 

What’s in the October 2014 Newsletter?

2014 Conference Photos!
SOFT President’s Message – Barb VanHerreweghe
Things Learned – Kris Holladay
2014 Conference Wrap-up
Remembering Philina Lockwood
First Annual Walk, Run, Roll
SOFT Utah Annual BBQ

Kinder Than Necessary – Pam Healey
Meet the Wheat Family!
Sweet Sixteen Morganne Jayme Dye
SOFT 2015 Conference Information
Wonder – R. J. Palacio
SOFT Donations

 

What’s in the July 2014 Newsletter?

Newsletter Content:

2014 Conference Information
A Date to Remember – Kris Holladay
President’s Corner – Barb VanHerreweghe
The Trisomy Awareness Month Photo Collage
Professional Viewpoint – John Carey, MD, MPH
(Evolving Medical and Surgical Management  

    of Infants with Trisomy 18)
Donations & Memorials
Look who’s over 30 years old!
Self-Nurturing

More Newsletter Content:

Trisomy Awareness Month – Terre Krotzer
Book Recommendations and Reviews
Conference Planning Committee Report
Miss Congeniality – Ashton Troi Wagner
Greta Thompson’s Equestrian Awards
Strength of the Spirit – Pam Healey
International Committee Report
Running with Krissy and Larry
Morghan attends ACMG Clinical Meeting
Angel Wings

Attention:  The password to enter the Newsletter Library changes as each quarterly issue is published.  Members are sent a new password by email and newly registering members are provided the password when they register.  If your password no longer works, perhaps your membership has expired – please renew now and you will automatically receive the new password.  If you are certain your membership is up-to-date but you do not know the password, send an email to the website content manager and we will look into the problem for you.

The SOFT Times newsletter has helped connect families for nearly three decades. Letters from families and articles from professionals are compiled, edited and printed in a quarterly newsletter.   This free on-line newsletter is available only to registered members (membership is free too!).

The SOFT editor is a parent volunteer who takes on this big task four times a year.   Deadlines for receiving letters and photos to print in the next issue are necessary and are always noted in each newsletter.  Remember to get your letters in on time!  The deadline for submitting articles & letters for the next edition of the SOFT Times Newsletter is  November 15, 2014.

The 2015 deadline schedule is:  February 15, May 17, August 16 and November 15th.

Submit all stories, pictures and any other information to the editors:  Raquel and Steve Wagner, Apt #10, East Meadow Pine CT, Salt Lake City, UT, 84106-4616.   You may also contact them by email at:   Newsletter Committee.  If you wish to have an item returned, please include a self-addressed stamped envelope and tell them of your return request.

Click here to see a brief Sample Newsletter  (they are usually 30-40 pages long; this is just a sample).

♥     ♥     ♥     ♥    ♥     ♥     ♥     ♥     ♥    ♥     ♥     ♥     ♥

Registered members can click the button above to enter the passworded Newsletter Library, which contains current and past newsletters.   The Newsletter Library password is changed periodically and the new password is emailed to you, so please record it!  If you have lost it, contact the Web Site Content Manager to get it again.

If you did not receive a password by email, it means one of four things:

1.  SOFT does not know your email address (send an email to the Membership Committee to correct this and to ask for the password).  If you do not have email, contact us by telephone at  800-716-7638 to get a password.

2.  Your membership has expired, and you should renew it by going to the Registration page.  Upon registering you will automatically be given the password.

3.  The email address SOFT has for you is no longer valid (send an email to Membership Committee to correct this and to ask for the password).

4.  Perhaps you just joined and forgot to record the password that was presented to you.  If so, send an email request to Web Site Content Manager.

♥     ♥     ♥     ♥    ♥     ♥     ♥     ♥     ♥    ♥     ♥     ♥     ♥
13