Conference Location History

SOFT has held annual family and medical conferences in various cities since 1987.  The annual conference is organized by a host chapter, for families and professionals from around the world in an effort to gather and exchange information, ideas, scientific data, and share family experiences.  Conference topics have included an overview of Trisomy 18 and Trisomy 13, medical issues affecting children with trisomy, support services available, information on making medical decisions for children with trisomy, and much more.  See the latest conference brochure for an overview of a typical conference.

A list of past conferences and the hospitals hosting the medical clinics follows (attendance numbers are below the photos):
Conference City:
2016 Tacoma, WA
2015 Salt Lake City, UT
2014 Norfolk, VA
2013 Providence, RI
2012 St Louis, MO
2011 Chicago, IL
2010 Sioux Falls, SD
2009 Roanoke, VA
2008 Denver, CO
2007 Salt Lake City, UT
2006 Chicago, IL
2005 Rochester, NY
2004 San Antonio, TX
2003 Salt Lake City, UT
2002 Chicago, IL
2001 Boston, MA
2000 Orlando, FL
1999 Rochester, NY
1998 Pittsburgh, PA
1997 Salt Lake City, UT
1996 Durham, NC
1995 Seattle, WA
1994 Toronto, Canada
1993 Chicago, IL
1992 Baltimore, MD
1991 Seattle, WA
1990 St Louis, MO
1989 San Francisco, CA
1988 Philadelphia, PA
1987 Salt Lake City, UT
Hospital Hosting the Clinics:
Mary Bridge Children’s Hospital, Tacoma, WA
Primary Children’s Hospital, Salt Lake City, UT
Children’s Hospital of the King’s Daughters, Norfolk, VA
Hasbro Children’s Hospital, Providence, RI
Cardinal Glennon Children’s Hospital, St. Louis, MO
Hope Children’s Hospital, Oak Lawn, IL
Sanford Children’s Hospital, Sioux Falls, SD
Carillion Roanoke Community Hospital, Roanoke, VA
The Children’s Hospital, Aurora, CO
Primary Children’s Hospital, Salt Lake City, UT
Hope Children’s Hospital, Oak Lawn, IL
Golisano Children’s Hospital at Strong, Rochester, NY
None.  Co-conference w/Chromosome 18 Registry.
Primary Children’s Medical Center, Salt Lake City, UT
Hope Children’s Hospital, Chicago, IL
Feingold Center for Children, Waltham, MA
Arnold Palmer Women & Children’s Hospital, Orlando, FL
Univ. Rochester/Strong Memorial Hospital, Rochester, NY
Allegheny General Hospital, Pittsburgh, PA
Primary Children’s Medical Center, Salt Lake City, UT
Lenox Baker Children’s Hospital, Duke Medical Ctr, NC
Univ Washington Children’s Hospital Medical Ctr, WA
Hospital for Sick Children, Toronto, Canada
Loyola University Medical Center, Maywood, IL
Kennedy Krieger Institute, Baltimore, MD
Children’s Hospital of Pittsburgh, Pittsburgh, PA
St. John’s Mercy Children’s Hospital, St Louis, MO
Univ California, San Francisco Medical Center, CA
Albert Einstein Medical Center, Philadelphia, PA
None at the first SOFT conference

 

 

 

Overlook at Roanoke, VA, balloon release 2008

Elizabeth and mom

SOFT conference 2012

Picnic3

Picnic2

Picnic1

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Conference Attendance:

2016 Tacoma: Total=284, Adults – 199, Children – 47, SOFT Children – 38
2015 Salt Lake City: Total=269. Adults – 198, Children – 30, SOFT Children – 41
2014 Norfolk, Va: Total=320. Adults – 217, Children – 59, SOFT Children – 43
2013 Rhode Island: Total=245. Adults – 171, Children – 44, SOFT Children – 30
2012 St Louis:
2011 Chicago: Total=329. Adults – 214, Children – 60, SOFT Children = 55

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