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Trisomy 18, Trisomy 13 Video Links

Dear families, visitors and professionals:

From time to time we find YouTube and other videos posted in the public domain by families celebrating their children who have various trisomy conditions and videos by professionals which provide useful information.   We provide links to these, below.

The first section, below, is for Medical, Genetic and Chromosome information.  The second section is for family videos.   Should you find any links that are no longer valid, or you wish to have your video removed or added, please email the Website Content Manager by using the communication form found here.    SOFT is not responsible for the accuracy of information contained in these videos, or for their content.

Medical, Genetic & Chromosome Informational Videos:

EVERY CASE IS UNIQUE: Delivering optimal medical care to babies born with Trisomy 13 and Trisomy 18.  Dr. Martin McCaffrey speaking at the Perinatal Conference in Dublin, 2016

The Secret Life of Babies  New research reveals what’s going on inside the womb.

Routine Health Care for the Trisomy Child
– a one-hour presentation by John C. Carey, MD, MPH, of the University of Utah, which includes audience interaction, Q&A and discussion.   The video is the first presentation by Dr Carey for the webinar series of presentations from Trisomy Talk, hosted by Terre Krotzer.

Constipation 101 – everything you wanted to know about your child’s constipation.  This is also a Trisomy Talk presentation!

Faces of Trisomy 9 Video

What are chromosomes?

Genes, DNA and Chromosomes.

Genes and Phenotypes.

Cracking the code: Understanding Rare Genetic Disorders by E McPherson

Family Videos:

Grace Ava Williams has a video!

A very nice video about a family, featuring Sophia, a child who has trisomy 13

See Gabby Arthur’s Video!

Abbie Ann’s Story

Brandon’s Mother’s Day Video!

“Your Child” by Jennifer Shaw – A song celebrating every life 
Visit http://www.jennifershaw.com

Hope for Lilliana 
http://www.facinglife.tv/episode/season_6/episode_11/episode_611.html

Delainey’s Disorder-Living with trisomy 13
http://www.youtube.com/watch?v=Gz6d41EMq2s

Now I Lay Me Down to Sleep – Trisomy
http://www.youtube.com/watch?v=-QJF0Cs4f9s

Every Life counts ~ Lilly Hollowell
http://www.everylifecounts.ie/stories/lilly-hollowell/20/

Pray For Lilly
http://pray4lilly.blogspot.com/

Annie’s Story: an Ethical Tragedy by B Farlow
http://www.youtube.com/watch?v=UqFkxT9BUJA

Trisomy 18 Miracles
http://www.youtube.com/watch?v=HfbtX9q3W-M

Never Give Up Hope by V Whitmore
http://www.youtube.com/watch?v=GZINNWrQqjo

One Extra Chromosome by K Weaver
http://www.youtube.com/watch?v=LKs3EDNVWTc&feature=related

Faces of Trisomy by J Wolpert
http://www.youtube.com/watch?v=-u2nbfgpP3U

Trisomy 13 Awareness     
http://www.youtube.com/watch?v=OE0IVJjPidM

Giuliana’s Gift of Life ~ a trisomy 18 blog
http://g-giftoflife.blogspot.com/

Natalia~Embracing Life~One Moment at a Time
http://www.trisomy13archive.com/albums/album14.htm

Strength*Faith*Struggle
http://www.santiagosstory.blogspot.com/

Little Faith To Big Faith
http://www.littlefaithtobigfaith.blogspot.com

Compatible With Joy
http://compatiblewithjoy-trisomy18.blogspot.com/

Dancing In The Rain
http://www.Jennychildress.blogspot.com/

Nalah Mari Friesen Smith- A Trisomy 18 Journey
http://www.nalahsmith.blogspot.com/

The Life of Nolan
http://nolansmiracleoflife.blogspot.com/

Caleb’s Journey
http://calebsjourneyfromgod.blogspot.com/

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