These links are for information, not an endorsement of any group:

The Alliance of Genetic Support Groups 
Website:  www.geneticalliance.org

The National Organization for Rare Disorders (NORD) (information on disorders)
Website:  http://www.rarediseases.org

Mothers United for Moral Support (MUMS)  (family matching)
Website:  http://www.netnet.net/mums/

Chromosome Deletion Outreach (CDO)
(family matching of rare disorders)
Website:  www.chromodisorder.org

Exceptional Parent (magazine for parents of child/ young adults with special needs, annual resource guide of organizations, products, and services)
Website:  http://eparent.com

Hygeia  (pregnancy & neonatal loss)
Website:  http://hygeia.org

National Parent to Parent Network(MUMS)
Website:  http://www.netnet.net/mums/
150 Custer Ct., Green Bay, WI  54301-1243
Phone:  (920) 336-5333

Support Groups for Chromosomal Conditions
Website: www.kumc.edu/gec/support/chromoso.html

Alexandra's House  
Website:  www.alexandrashouse.com

VALENTIN A.P.A.C.
Association de Porteurs d'Anomalies Chromosomiques
52, La Butte Églantine - 95610 ÉRAGNY SUR OISE
Tél/Fax : 01 30 37 90 97
Email : contact@valentin-apac.org
Website : http://www.valentin-apac.org
Forum : http://forums.multimania.lycos.fr/use/valentinapac/