~ Other publications which might be of interest to our readers ~
SOFT refers you to other publications which might be of interest. Referral does not constitute an endorsement of any publication’s content. Please let us know if you find other books thought to be of interest to our members.
After the Error is available from Amazon.com, after April 1st, 2013.
In a series of true stories from across Canada, this collection seeks to point out the considerable human toll that medical errors cause. Victims of medical errors and their families who speak out often do so at considerable emotional, psychological, and financial expense. But their willingness to share their harrowing stories has helped to lay the foundation for numerous patient safety programs and continues to identify problems, provide solutions, and raise awareness. These emotional and moving stories underline serious issues with medical errors while empowering patients.
Book by SOFT parent Sheryl Crosier “I Am Not a Syndrome – My Name is Simon” is now available from publisher All Star Press - Books that Change Lives. It is offered in all online e-book formats and in paperback form from the publisher’s website, http://allstarpress.com/?page_id=1322. A portion of the proceeds from every sale of this book will go to SOFT.
Sheryl Crosier’s latest article about Simon, our children with trisomy and their lives can be found here: http://www.wf-f.org/13-3Crosier.html “Struggling with the fragility of your child’s life is one thing. Fighting the popular pragmatic culture that measures human life in terms of dollars instead of dignity is quite another. “Our kids are not disposable and deserve every consideration,” said Dr. Steve Cantrell, the father of Ryan, who died of trisomy 18. “The souls and spiritual essence of our children are not disabled. Their physical handicaps exist but their desire to thrive is not diminished.”
SOFT U.K. has a nice booklet for siblings. Read it here: http://trisomy.org/wp-content/uploads/2012/11/SOFT-Siblings-Booklet-copy.pdf
SOFT U.K. also has a helpful section on Sibling Grief, which can be read here: http://www.soft.org.uk/Bereavement/Sibling-grief
Embracing Quincy: Our Journey Together [Paperback] A book by Katie Marsh; available from Amazon.com (click the title). A True Story of the Mystical, Unbelievable and Unexplainable. When a high-tech ultrasound at 22 weeks revealed that Quincy may be trisomy 18, the Marsh family was given a choice: to terminate or to continue Embracing Quincy. What happens when you’re told that your baby will probably not live? And if by some miracle she does live, she will be extremely disabled? Embracing Quincy takes you on the path almost never traveled by a couple that is decidedly not religious but very spiritually oriented. It shows you a naked glimpse into their personal lives, their travels and their mystical journey with their trisomy 18 baby Quincy.