“We love her already and will not stop trying to find someone, some facility, who will believe with us!!!”
April S, Trisomy 18 and CDH, 02/25/2019, Live 7 weeks, Orrtanna, PA
So yay!! We were so excited!!! We’re pregnant with baby 11!!!! Going in for an Ultrasound has always been one of the most exciting days of my life!!!!! Until, it took almost 2 hrs!!! I told my husband, she either has the worst bed side manor ever, or something is seriously wrong, as she proceeded with cold silence!!!!
Fast forwarding to now, 3 weeks later, visits to MFM, and our local Children’s Hospital, we sit feeling helpless!!! We have been told that our baby girl is “incompatible with Life” Yet we read of babies surviving with both Trisomy 18 and CDH!! We have found near nothing with a baby who has both! Though our baby seems to us to be doing so well in the womb!! Her heart is complete without defect, Lungs present and moderate, both kidneys functioning, Amniotic levels good, Brain only neg. is the Choroid Plexus cysts. As for the hernia, (left side) it is her stomach, intestine section, and liver. Despite the findings, we feel that every life is valuable, and should be fought for, until there is no fight left. We feel she is worth it!! We love her already and will not stop trying to find someone, some facility, who will believe with us!!! Please share our story and help us find help before its too late!! We are near 23 weeks now. And our local facility is telling us the humane thing to do is comfort care and hold her while she dies!!! This is not acceptable to us. It doesn’t feel human, to not exhaust all efforts! We believe that God has a plan for our baby a plan to give her life and purpose!!!!