2023 Conference

At this time, planning for the 2023 SOFT Conference is in process.  Information will be posted as it becomes available. The tentative location and dates are Greenville, SC, and the dates are 7/12/2023 through 7/15/2023.

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International Trisomy Alliance (ITA) Publications

                          The International Trisomy Alliance (ITA) website is no longer in use.  This organization has produced many excellent publications which families can read and download.  Links to these publications are below; click on the booklet title to open it as a .pdf file…

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SOFT Conference 2022 Covid-19 Precautions

Questions and concerns about COVID-19 are regularly posed to health care professionals regarding the care for persons with trisomy 13, trisomy 18, and related trisomy syndromes. These issues were particularly relevant in the recent decision of the SOFT Board of Directors to host the hybrid 2022 Conference this July 13-17 in Roanoke Virginia. The SOFT…

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2022 Kari Holladay “SOFT Friends” Video Submission

ANNUAL SOFT Friends Video   EVERYONE IS INVITED to submit pictures for the annual “Kari Holladay SOFT Friends Video” a special presentation honoring all our children through pictures and music. The video will be presented at the 2022 Roanoke VA SOFT Conference in July. DETAILS: PHOTOS: submit only 1-2 pictures per child (can include siblings…

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Video – 2022 SOFT Medical Advisory Board Round Table

First ever SOFT Medical Advisory Board Round Table Recorded March 18, 2022 Featuring:  Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay of the first SOFT Medical Advisory Board Round Table hosted by Dr. John C. Carey. This Q & A style roundtable…

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Trisomy Awareness Month Proclamations

Trisomy Awareness Month Proclamations 2022

2022 Trisomy Awareness Month Begins March 1st! As of March 10, 2022, SOFT has received 2022 Trisomy Awareness Month Proclamations from 17 states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get the month officially recognized by individual states. Our numbers are…

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2022 Trisomy Awareness Profile Frames & Covers

Help Spread Trisomy Awareness with a Trisomy Awareness Profile Frame and Cover Image. To help you raise Trisomy Awareness SOFT has created Trisomy Awareness Profile Frames and Cover Images for you to use on your Facebook page and across all of your social media accounts. Facebook is limiting the number of organizations and companies that…

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2022 Trisomy Awareness “SOFT” Wear Collection

March is Trisomy Awareness Month We are excited to release the 2022 Trisomy Awareness “SOFT” Wear Collection. Update: The special order of Trisomy Awareness Shirts is closed. You can still order directly from our Trisomy Awareness Store on Spri.ng.  This year we are doing something different and having our shirts screen printed. Because of this…

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The Erin Jorgensen Memorial Scholarship

When we first had our daughter Erin we imagined all of the highlights to come in her life: her first day of school, prom, going off to college, getting married. Once we were given her diagnosis, when she was two weeks old, we realized that those highlights may never come. We got to be with…

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