News Archives - SOFT - Support Organization For Trisomy

ALL CALL for pictures for the SOFT Friends Video We invite you to be a part of the annual Kari Holladay “SOFT Friends” Video montage, a special presentation honoring all our children through pictures and music. PHOTOS of all varieties are appreciated: touching, funny, sweet, silly, heartwarming, achievements, and feel free to include your SOFT…

Introducing our new SOFT Trisomy Strong bows, streamers and zipper pulls, available in a variety of Awareness Colors. These adorable “SOFT” accessories can help you raise awareness during Trisomy Awareness Month and all year long. After all, any day can be Awareness Day!

To honor our SOFT Trisomy Angels, we will hold our 2nd annual Trisomy Awareness Month “Remembering our Angels” Candle lighting event on Saturday March 6, 2021 at 9pm ET. Whether you hold your child in your heart or in your arms, we invite all of our SOFT families to join us for this heartfelt event.…

March 1st begins 2021 Trisomy Awareness Month As of today, SOFT has received 2021 Trisomy Awareness Month Proclamations from 24 states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get the month officially recognized by individual state. Eight states would have declared…

SOFT Trisomy Awareness Month Video Blast

Join us for the Trisomy Awareness Month video blast! The Trisomy Awareness Month video blast is coming and we hope you will join us. We are going to blast social media with short 60 second videos to inform and educate people about our SOFT kids and their various Trisomy conditions. We invite all of…

March is Trisomy Awareness Month! Trisomy Awareness Month is the time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and remember our sweet Angels who left us far too soon. Trisomy Awareness Month is not just about sharing what a Trisomy is and how it can…

If your child with Trisomy 18 is or was a long-term survivor (1+ years) please help with this study conducted by the Trisomy 18 Registry.

This video is a replay of the SOFT 2020 Virtual Conference delivered by Josh Bradley. From the SOFT 2020 Virtual Conference.

Dr. Steven Cantrell – Seizures, Light Sensitivity and Headaches From the SOFT 2020 Virtual Conference Dr. Cantrell’s workshop, Seizures, Light Sensitivity and Headaches will review the many triggers causing seizures and how to protect your child. Nutrition, Eye Protection, and removing triggers around the house will decrease seizure activity. About Dr. Steven Cantrell:Dr. Steven Cantrell…

Dr. Stephen BraddockTumor Risk and Surveillance in Trisomy 18. Dr. Braddock discusses Wilms tumor and other conditions that a child with trisomy should be monitored for. From the SOFT 2020 Virtual Conference. About Dr. Stephen Braddock:Dr. Stephen Braddock provides genetic evaluations, diagnoses, and counseling for patients of all ages. This includes services not exclusive to…