The first of a series of videos from the SOFT 2020 Virtual Conference. Deborah A. Bruns, Ph.D.  shares shining moments from the TRIS project: An overview and review of activities with Deborah A. Bruns, Ph.D. About Deborah A. Bruns Ph.D:Deborah A. Bruns is Professor and Off-campus program coordinator for the Special Education program in the…

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Megan Hayes, oldest known individual in the US (2nd oldest in the world) with Full Trisomy 18 has recently turned 40 years old. A longtime member of SOFT, Megan lives with her parents Ron and Sara Hayes in Oklahoma City, OK. To commemorate Megan’s milestone her story was featured on two news channels in Oklahoma…

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The 2020 SOFT Virtual Conference planning is underway and we are really excited to share our event with you. The team has been working hard to make sure our virtual event feels as much like home as our in-person events do. Because of the virtual format, we have stretched conference out a few days. It…

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SOFT is a family consisting of many beautifully diverse individuals. Loving a person with a trisomy condition is the glue that holds us all together. Today and every day, we stand with the many others that are protesting against the ongoing racial injustice prevalent in our society. The countless lives that have been lost are…

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The New York Times reports: “Federal civil rights office rejects rationing medical care based on disability or age.” The U.S. Department of Health and Human Services’ civil rights office told medical providers on Saturday that they may not deny medical care to people on the basis of their disabilities or age during the coronavirus emergency.…

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A message from Dr. John Carey, SOFT Medical Advisor Greetings to Families and Friends of SOFT, At this unreal time, let me say first that I share with all the intense and widespread concerns and anxiety engendered by COVID-19. Despite working every day at home now, and on occasion at the hospital, the implications of…

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To Our SOFT Family: SOFT is an organization that has always and will always put families first. In light of the arrival of COVID-19 in the United States, the Board of Directors convened to discuss appropriate actions that should be taken in order to keep our members, and most importantly our SOFT children, safe. We…

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It’s March and in SOFT’s world that means Trisomy Awareness Month! Every March our SOFT community celebrates Trisomy Awareness Month. This is a time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and remember our sweet Angels who left us far too soon. The message we deliver…

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