Trisomy Awareness Month Proclamations

March 1st begins 2021 Trisomy Awareness Month As of today, SOFT has received 2021 Trisomy Awareness Month Proclamations from 24 states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get the month officially recognized by individual state. Eight states would have declared…

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“Los comienzos” La historia de SOFT: Organización  de Apoyo para las Trisomías 18, 13 y Trastornos Relacionados. Escrito por Kris Holladay. Recuerdo a…Brandy Woodcox. Nunca olvidaremos su nombre en nuestra familia. Fue en noviembre de 1977 cuando Kari tenía tan solo dos meses de vida. Le preguntábamos a todos-incluso a desconocidos en la calle-si había…

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SOFT Trisomy Awareness Month Video Blast

  Join us for the Trisomy Awareness Month video blast! The Trisomy Awareness Month video blast is coming and we hope you will join us. We are going to blast social media with short 60 second videos to inform and educate people about our SOFT kids and their various Trisomy conditions. We invite all of…

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SOFT Trisomy Awareness Month Products

March is Trisomy Awareness Month! Trisomy Awareness Month is the time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and remember our sweet Angels who left us far too soon. Trisomy Awareness Month is not just about sharing what a Trisomy is and how it can…

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We have had a really happy, healthy second year with Claire! She’s been to the beach and is learning to crawl. She loves music, especially Raffi, and is very ticklish. At our 20 week anatomy scan, we were shocked. Our baby’s eyeballs were so underdeveloped, the doctor wasn’t sure if they were there at all.…

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We make the most of our situation. We laugh through hospital admissions. We sing through the storm. And we love more fiercely than we ever have. All because of one extra chromosome. ‘Trisomy 18.’ ‘Incompatible with life.’ ‘Why would anyone want a baby like that?’ I think back to the day those words shook my…

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Though this has not been an easy journey, it is one I would pick a million times over, just to meet our sweet boy. My husband and I first learned something was “wrong” when I was about 11 weeks pregnant, with Omar, who has full Trisomy 13. The doctor told me Omar had fluid in…

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“Journey is not and never will be a diagnosis, she is Journey, and she has her own story to be written by the hand of God.” Theodore Roosevelt wrote, “Never throughout history has a man who lived a life of ease left a name worth remembering.” Journey Love’s name was chosen long before we knew…

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“Verity’s life is anything but futile! She brings love and joy to our household every single day. Her smile and laugh light up our world.” I had never heard of Edwards Syndrome before I got the phone call, but it was the day that changed our lives. Diagnostics confirmed over the next week that our…

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