Covid-19 Vaccination Update for Children with Trisomy

The authorization by the Food & Drug Administration of the Pfizer vaccine for children ages 12 to 16 years and the strong recommendation by the Centers for Disease Control & Prevention (CDC)  to administer the vaccine are major landmarks in the history of slowing the COVID-19 pandemic.  These important events likely raise the issue for…

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2021 Kari Holladay “SOFT Friends” Video Submission

Submission for the 2021 SOFT Friends Video is now closed. —————— ALL CALL for pictures for the SOFT Friends Video We invite you to be a part of the annual Kari Holladay “SOFT Friends” Video montage, a special presentation honoring all our children through pictures and music. PHOTOS of all varieties are appreciated:  touching, funny,…

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Krissy Krotzer – Trisomy 18

“This little girl, who cannot do anything to care for herself, is so filled with love that no matter how much she needs; she still gives far more than she takes. She is a beacon of light. She has taught us to believe in possibilities. She has taught us what it truly means to give…

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Tabitha E – Trisomy 18

“Whenever one of us needs a pick-me-up, we can always count on Tabitha to respond to snuggles with affectionate smiles. Although Tabitha may not contribute to society in the same way as her siblings, the lives she touches are forever changed for the better.” Since Tabitha is our 6th child, we opted not to do…

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Freya Pike – Trisomy 18

“Freya is sassy, sweet, silly and is always letting us know what she thinks. She smiles, laughs, plays, and keeps us all on our toes.” We first recieved Freya’s diagnosis through a blood test called an NIPT. I was approximately 20 weeks at the time of this blood draw. I have always taken the test…

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Augustinas Berankis – Trisomy 13

“He has taught us so much already! We are blessed to have Augustinas in our family.” When my pregnancy reached eighteen weeks, we had an ultrasound that resulted in Patau syndrome as my son’s diagnosis. I was told that there was a huge possibility of miscarriage. Our doctor of genetics let me know that the…

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The SOFT Trisomy Strong Bow Collection

Introducing our new SOFT Trisomy Strong bows, streamers and zipper pulls, available in a variety of Awareness Colors. These adorable “SOFT” accessories can help you raise awareness during Trisomy Awareness Month and all year long. After all, any day can be Awareness Day!  

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Arleth Alcantara – Trisomy 13

“It was hard, but not impossible, because my love for Arleth and her eagerness to live, gave me the strength I needed to go on.” Arleth was born at 35 weeks and 6 days. She weighed 5 pounds and 13 ounces. She spent 23 days in the NICU, so she was baptized there since we…

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Cece Havre – Trisomy 18 Mosaic

Cece knows love, she cares when someone is sad, and she will burst out laughing for no reason. She is just a blessing to our family. Cecilia was born at 36 weeks. She was my fourth pregnancy and fourth C-Section. At my twenty week scan I was told Cecilia would need treatment for the rest…

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