We have had a really happy, healthy second year with Claire! She’s been to the beach and is learning to crawl. She loves music, especially Raffi, and is very ticklish. At our 20 week anatomy scan, we were shocked. Our baby’s eyeballs were so underdeveloped, the doctor wasn’t sure if they were there at all.…

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We make the most of our situation. We laugh through hospital admissions. We sing through the storm. And we love more fiercely than we ever have. All because of one extra chromosome. ‘Trisomy 18.’ ‘Incompatible with life.’ ‘Why would anyone want a baby like that?’ I think back to the day those words shook my…

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Though this has not been an easy journey, it is one I would pick a million times over, just to meet our sweet boy. My husband and I first learned something was “wrong” when I was about 11 weeks pregnant, with Omar, who has full Trisomy 13. The doctor told me Omar had fluid in…

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“Journey is not and never will be a diagnosis, she is Journey, and she has her own story to be written by the hand of God.” Theodore Roosevelt wrote, “Never throughout history has a man who lived a life of ease left a name worth remembering.” Journey Love’s name was chosen long before we knew…

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“Verity’s life is anything but futile! She brings love and joy to our household every single day. Her smile and laugh light up our world.” I had never heard of Edwards Syndrome before I got the phone call, but it was the day that changed our lives. Diagnostics confirmed over the next week that our…

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“I would do it all again just to have the chance to hold my baby one more time.” On April 4, 2020 my life changed forever. I went into my 13 week ultrasound only to be told the baby was showing signs of Trisomy 13. I had no idea what this condition was, everything was…

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Aaliyah’s life is truly a blessing. She’s our angel. Our miracle baby. A hungry warrior. My baby girl’s name is Aaliyah Esperanz and she has trisomy 13. Ummmm. We didn’t know anything ahead of time. I had a a normal pregnancy – no red flags. She was born 3 1/2weeks early. When she was born,…

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April’s Story “We love her already and will not stop trying to find someone, some facility, who will believe with us!!!” April S, Trisomy 18 and CDH, 02/25/2019, Live 7 weeks, Orrtanna, PA So yay!! We were so excited!!! We’re pregnant with baby 11!!!! Going in for an Ultrasound has always been one of the…

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“Wow.. she can sit unaided,…laughs, giggles, baby talks, loves throwing anything…” Mollie Ella Grace Foster, Trisomy 18, 8/12/2004, New Zealand Mollie Ella Grace.. our 7th child, born with full Trisomy 18.. is now 7.6 years old and will turn 8 on the 12th August 2012.  Mollie was born at 36 weeks via c-section and weighed…

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Stacy’s Story   “Stacy loves every minute of her day and comes home laughing, smiling and singing…” Stacy Lynn VanHerreweghe,  Rochester, NY,  Trisomy 18,  5/21/1981   Update:  Stacy is now 34 years old. She is still enjoying life to the fullest. She attends a day program daily and volunteers out in the community. She is…

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