Stories
Alejandro S – Trisomy 18
My baby is 8 month old. He’s a really happy boy. When he born they told us he wasn’t going to make it. They didn’t want to do his heart surgery so we started to look for a different hospital. We got the best doctor, Dr. Charles Huddles at Cardinal Glennon in St. Louis, MO.…
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Madilyn F – Trisomy 18
“We spent many wonderful hours just enjoying our sweet little girl. There are many things I wish could have been different but I will always treasure the time I had with Madilyn.” At our 20 week ultrasound we learned we were having a girl! We were so excited. My husband left to buy pink donuts…
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Krissy Krotzer – Trisomy 18
“This little girl, who cannot do anything to care for herself, is so filled with love that no matter how much she needs; she still gives far more than she takes. She is a beacon of light. She has taught us to believe in possibilities. She has taught us what it truly means to give…
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Tabitha E – Trisomy 18
“Whenever one of us needs a pick-me-up, we can always count on Tabitha to respond to snuggles with affectionate smiles. Although Tabitha may not contribute to society in the same way as her siblings, the lives she touches are forever changed for the better.” Since Tabitha is our 6th child, we opted not to do…
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Freya Pike – Trisomy 18
“Freya is sassy, sweet, silly and is always letting us know what she thinks. She smiles, laughs, plays, and keeps us all on our toes.” We first recieved Freya’s diagnosis through a blood test called an NIPT. I was approximately 20 weeks at the time of this blood draw. I have always taken the test…
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Augustinas Berankis – Trisomy 13
“He has taught us so much already! We are blessed to have Augustinas in our family.” When my pregnancy reached eighteen weeks, we had an ultrasound that resulted in Patau syndrome as my son’s diagnosis. I was told that there was a huge possibility of miscarriage. Our doctor of genetics let me know that the…
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Arleth Alcantara – Trisomy 13
“It was hard, but not impossible, because my love for Arleth and her eagerness to live, gave me the strength I needed to go on.” Arleth was born at 35 weeks and 6 days. She weighed 5 pounds and 13 ounces. She spent 23 days in the NICU, so she was baptized there since we…
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Cece Havre – Trisomy 18 Mosaic
Cece knows love, she cares when someone is sad, and she will burst out laughing for no reason. She is just a blessing to our family. Cecilia was born at 36 weeks. She was my fourth pregnancy and fourth C-Section. At my twenty week scan I was told Cecilia would need treatment for the rest…
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Sarah Catherine – Trisomy 18
We see life through a completely new lens, and we know she isn’t an accident, a fluke, or a clump of cells – but a valuable part of God’s beautiful plan, and a daily reminder of what’s truly important. In the Fall of 2018, we learned we were being blessed with another baby. I agreed without…
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Claire L – Trisomy 13
We have had a really happy, healthy second year with Claire! She’s been to the beach and is learning to crawl. She loves music, especially Raffi, and is very ticklish. At our 20 week anatomy scan, we were shocked. Our baby’s eyeballs were so underdeveloped, the doctor wasn’t sure if they were there at all.…
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