Journey Hoffman

“Journey is not and never will be a diagnosis, she is Journey, and she has her own story to be written by the hand of God.” Theodore Roosevelt wrote, “Never throughout history has a man who lived a life of ease left a name worth remembering.” Journey Love’s name was chosen long before we knew…

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Verity Jacobson – Trisomy 18

“Verity’s life is anything but futile! She brings love and joy to our household every single day. Her smile and laugh light up our world.” I had never heard of Edwards Syndrome before I got the phone call, but it was the day that changed our lives. Diagnostics confirmed over the next week that our…

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Carter R – Trisomy 13

“I would do it all again just to have the chance to hold my baby one more time.” On April 4, 2020 my life changed forever. I went into my 13 week ultrasound only to be told the baby was showing signs of Trisomy 13. I had no idea what this condition was, everything was…

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Aaliyah Pineda – Trisomy 13

Aaliyah’s life is truly a blessing. She’s our angel. Our miracle baby. A hungry warrior. My baby girl’s name is Aaliyah Esperanz and she has trisomy 13. Ummmm. We didn’t know anything ahead of time. I had a a normal pregnancy – no red flags. She was born 3 1/2weeks early. When she was born,…

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April S – Trisomy 18

April’s Story “We love her already and will not stop trying to find someone, some facility, who will believe with us!!!” April S, Trisomy 18 and CDH, 02/25/2019, Live 7 weeks, Orrtanna, PA So yay!! We were so excited!!! We’re pregnant with baby 11!!!! Going in for an Ultrasound has always been one of the…

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Mollie Foster

“Wow.. she can sit unaided,…laughs, giggles, baby talks, loves throwing anything…” Mollie Ella Grace Foster, Trisomy 18, 8/12/2004, New Zealand Mollie Ella Grace.. our 7th child, born with full Trisomy 18.. is now 7.6 years old and will turn 8 on the 12th August 2012.  Mollie was born at 36 weeks via c-section and weighed…

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Stacy Lynn VanHerreweghe

Stacy’s Story   “Stacy loves every minute of her day and comes home laughing, smiling and singing…” Stacy Lynn VanHerreweghe,  Rochester, NY,  Trisomy 18,  5/21/1981   Update:  Stacy is now 34 years old. She is still enjoying life to the fullest. She attends a day program daily and volunteers out in the community. She is…

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