2023 Conference

At this time, planning for the 2023 SOFT Conference is in process.  Information will be posted as it becomes available. The tentative location and dates are Greenville, SC, and the dates are 7/12/2023 through 7/15/2023.

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International Trisomy Alliance (ITA) Publications

                          The International Trisomy Alliance (ITA) website is no longer in use.  This organization has produced many excellent publications which families can read and download.  Links to these publications are below; click on the booklet title to open it as a .pdf file…

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Video – 2022 SOFT Medical Advisory Board Round Table

First ever SOFT Medical Advisory Board Round Table Recorded March 18, 2022 Featuring:  Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay of the first SOFT Medical Advisory Board Round Table hosted by Dr. John C. Carey. This Q & A style roundtable…

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Video – Perspectives on the Care and Management of Children with Trisomy 13 and 18 Syndromes

Intermountain Children’s Primary Hospital – Pediatric Grand Rounds John C. Carey, MD, MPH, FAAP, FACMG    Emeritus ProfessorUniversity of Utah School of MedicinePediatric Genetics  Primary Children’s Hospital Objectives: List the important manifestations and complications occurring in the 2 trisomy syndromes Identify the key issues surrounding the controversies in care of infants with trisomy 13 and 18

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Supplemental Needs Trusts

From the SOFT 2021 Virtual ConferenceSupplemental Needs TrustsDaniel A. Kautz discusses what parents of children and adults with Trisomy conditions need to know about setting up Special Needs Trusts to protect their children financially. Daniel A. Kautz is a Registered Investment Representative with investment experience since 1999. Building and maintaining client relationships is Dan’s top…

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