Resources
International Trisomy Alliance (ITA) Publications
            The International Trisomy Alliance (ITA) website is no longer in use. This organization has produced many excellent publications which families can read and download. Links to these publications are below; click on the booklet title to open it as a .pdf file…
Read MoreVideo – 2022 SOFT Medical Advisory Board Round Table
First ever SOFT Medical Advisory Board Round Table Recorded March 18, 2022 Featuring: Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay of the first SOFT Medical Advisory Board Round Table hosted by Dr. John C. Carey. This Q & A style roundtable…
Read MoreVideo – Perspectives on the Care and Management of Children with Trisomy 13 and 18 Syndromes
Intermountain Children’s Primary Hospital – Pediatric Grand Rounds John C. Carey, MD, MPH, FAAP, FACMG   Emeritus ProfessorUniversity of Utah School of MedicinePediatric Genetics  Primary Children’s Hospital Objectives: List the important manifestations and complications occurring in the 2 trisomy syndromes Identify the key issues surrounding the controversies in care of infants with trisomy 13 and 18
Read MoreSOFT 2021 Candle Lighting Remembrance Ceremony
From the SOFT 2021 Virtual Conference This is the replay of the 2021 Candle Lighting Remembrance Ceremony. Join us as we remember and honor our SOFT Angels.
Read MoreFinding Words for our Grief
From the SOFT 2021 Virtual Conference Cora Welsh, M.A., CCLSRev. Matt Norvell, DMin., M.S., B.C.C. Pediatric Chaplain
Read MoreFinding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health
From the SOFT 2021 Virtual Conference. Dr. Steven Cantrell, OD – Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health.
Read MoreSupplemental Needs Trusts
From the SOFT 2021 Virtual ConferenceSupplemental Needs TrustsDaniel A. Kautz discusses what parents of children and adults with Trisomy conditions need to know about setting up Special Needs Trusts to protect their children financially. Daniel A. Kautz is a Registered Investment Representative with investment experience since 1999. Building and maintaining client relationships is Dan’s top…
Read MoreFitting and Adjusting Mobility Equipment
From the SOFT 2021 Virtual Conference Fitting, Adjusting and Modifying Mobility Equipment – Strategies for Adults and Children with Trisomies Michael J. Workman PT C/NDT
Read MoreAquatic Therapy
From the SOFT 2021 Virtual Conference. Aquatic Therapy – Briana Demars OTA
Read MoreSpectrum of Epilepsy in Trisomy 18 Syndrome
From the SOFT 2021 Virtual Conference Professionals Panel. Spectrum of Epilepsy in Trisomy 18 SyndromeDr. Agatino Battaglia, MD, DPed, DNeurol
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