Laura Lindroth, Director of Programming and Community Engagement at Rainbows for All Children, discusses Support for the Grieving Sibling. From the SOFT 2020 Virtual Conference. About Laura Lindroth:Laura Lindroth is Director of Programming and Community Engagement at Rainbows for All Children, committed to expanding the number of peer support groups, adapting an equitable training and…

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Provision of information and links does not constitute SOFT USA’s endorsement of any group. The International Trisomy 18/13 Alliance (ITA) is a volunteer, not-for-profit organization focusing on trisomy 13 and trisomy 18, (also known as Patau and Edwards syndromes respectively).   The mission is to offer trisomy 13 and trisomy 18 support groups, physicians and other professionals, accurate…

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I know we might not have known each other long. Maybe you’re a friendly cashier, or someone buying the same grapes as me at the grocery store. Maybe we’re taking turns on a machine at the gym, or we just met at a professional development opportunity. We make friendly banter, which I’m probably not enthused…

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How to Support a Parent in Grief Wisdom from Bereaved Parents of Children Diagnosed with a Syndrome “People told us that having him would be the hardest thing we ever did.  But they were wrong. The hardest part is not having him.”  Patricia Farmer, Joey, Trisomy 13 “If you are lucky enough to have not…

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It’s March and in SOFT’s world that means Trisomy Awareness Month! Every March our SOFT community celebrates Trisomy Awareness Month. This is a time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and remember our sweet Angels who left us far too soon. The message we deliver…

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Healing Your Spirit Workshop Presentation From the 2011 SOFT Conference in Chicago Presenter:  Ms Diane Robinson Notes by: Gerri Meggett This workshop provided a new perspective on God and His plan for us. It shed some light on where God is when you can’t seem to find Him. The presenter, Ms. Diane Robinson, is a…

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Workshop Presentation from the 2011 SOFT Conference in Chicago Presenter:  Valerie Lentz, LCSW Workshop notes by Gerri Meggett Families that have children with special needs get to celebrate wonderful victories while also handling unique challenges and stressors. With all of the time and energy that goes into caring for your special needs child, it may…

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The Nature of Hope: A Live Interview with the Family of Little Erin Workshop Presentation From the 2010 SOFT Conference in Sioux Falls Presenter: Dr. Lawrence Fenton, M.D Dr. Fenton emphasized that each patient is ill in his or her own way. Physicians and others must remember that underneath the joyous times is bereavement, loss,…

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