Expecting A Child
International Trisomy Alliance (ITA) Publications
            The International Trisomy Alliance (ITA) website is no longer in use. This organization has produced many excellent publications which families can read and download. Links to these publications are below; click on the booklet title to open it as a .pdf file…
Read MoreVideo – 2022 SOFT Medical Advisory Board Round Table
First ever SOFT Medical Advisory Board Round Table Recorded March 18, 2022 Featuring: Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay of the first SOFT Medical Advisory Board Round Table hosted by Dr. John C. Carey. This Q & A style roundtable…
Read MoreNewborn Airway Evaluation and Mandibular Distraction in Trisomy 18
From the SOFT 2021 Virtual Conference Professional Panel: Newborn Airway Evaluation and Mandibular Distraction in Trisomy 18Glenn E. Green, MD, Professor, Department of Otolaryngology-Head and Neck Surgery
Read MorePerspectives on the Care of Children with Trisomy 18/13 – 2021 Version
From the SOFT 2021 Virtual Conference Professional Panel: 2021 Version of Perspectives on the Care of Children with Trisomy 18/13John C. Carey, MD, MPH, FAAP, FACMGG, Professor Emeritus, University of Utah
Read MoreTrisomy 18/13 – The Basics – 2021 Version
From the SOFT 2021 Virtual Conference: 2021 Version of Trisomy 18/13 – The BasicsJohn C. Carey, MD, MPH, FAAP, FACMGG, Professor Emeritus, University of Utah
Read MoreCongenital Heart Surgery in Trisomy 13 and 18
From the SOFT 2021 Virtual Conference Professional Panel Congenital Heart Surgery in Trisomy 13 and 18 – An Update and Future Directionswith Dr. Katherine Kosiv, Assistant Professor of Clinical Pediatrics, Yale School of Medicine
Read MoreInterdisciplinary Care of Children with Trisomy 13 and 18
From the SOFT 2021 Virtual Conference Professionals Panel. Interdisciplinary Care of Children with Trisomy 13 and 18with Dr. Nicole Birge, MD, Medical Director of the Neonatal Intensive Care Unit at Children’s Omaha and Dr. Lois Starr, MD, PhD.
Read MoreVideo – Trisomy 13 and 18: The Basics
Dr. John Carey – Trisomy 13/18 The Basics Dr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference. Dr. John C. Carey Throughout his career, Dr. Carey has been interested in birth defect syndromes and the care of children with these…
Read MoreVideo – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18
Dr. Nicole Birge & Dr. Meaghann WeaverHeartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18. From the SOFT 2020 Virtual Conference. About Dr. Nicole Birge:Nicole Birge M.D. is the Medical Director of the Neonatal Intensive Care Unit at Children’s Hospital and Medical Center Omaha.Children’s NICU is unique…
Read MoreVideo – Advances in the Care of Newborns & Infants with Trisomy 18 and 13
From the 2020 SOFT Virtual ConferenceSession 2 of the Professionals Panel Dr. Glenn Green & Dr. Shaji Menon discuss Advances in the Care of Newborns & Infants with Trisomy 18 and 13 Recorded on July 15, 2020. About Dr. Shaji Menon Dr. Shaji Menon is an Associate Professor of Pediatrics and Adjunct Associate Professor of…
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