Resources
Congenital Heart Surgery in Trisomy 13 and 18
From the SOFT 2021 Virtual Conference Professional Panel Congenital Heart Surgery in Trisomy 13 and 18 – An Update and Future Directionswith Dr. Katherine Kosiv, Assistant Professor of Clinical Pediatrics, Yale School of Medicine
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Interdisciplinary Care of Children with Trisomy 13 and 18
From the SOFT 2021 Virtual Conference Professionals Panel. Interdisciplinary Care of Children with Trisomy 13 and 18with Dr. Nicole Birge, MD, Medical Director of the Neonatal Intensive Care Unit at Children’s Omaha and Dr. Lois Starr, MD, PhD.
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Read MoreT13 Families
Parent-reported histories of adults with trisomy 13 syndrome
Click here to view and download a .pdf copy of this article. or, the entire article can be read, below.
Read MoreProtected: Tracheostomy Surgery Registry
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Newborns with trisomy 13 or 18 can benefit from heart surgery
Republished with permission. Infants with the genetic disorders trisomy 13 or 18 are more likely to survive if they undergo heart surgery, a study from researchers at Stanford and the University of Arkansas has found. Heart surgery significantly decreases in-hospital mortality among infants with either of two genetic disorders that cause severe physical and intellectual…
Read More2021 Trisomy Awareness Month Product Order Form
Trisomy 18 Long-Term Survivors Survey
If your child with Trisomy 18 is or was a long-term survivor (1+ years) please help with this study conducted by the Trisomy 18 Registry.
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Carter R – Trisomy 13
“I would do it all again just to have the chance to hold my baby one more time.” On April 4, 2020 my life changed forever. I went into my 13 week ultrasound only to be told the baby was showing signs of Trisomy 13. I had no idea what this condition was, everything was…
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