Trisomy 9 Archives - SOFT - Support Organization For Trisomy

International Trisomy Alliance (ITA) Publications

By Frank B | August 16, 2022

The International Trisomy Alliance (ITA) website is no longer in use. This organization has produced many excellent publications which families can read and download. Links to these publications are below; click on the booklet title to open it as a .pdf file…

Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health

By Terre Krotzer | August 10, 2021

From the SOFT 2021 Virtual Conference. Dr. Steven Cantrell, OD – Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health.

Fitting and Adjusting Mobility Equipment

By Terre Krotzer | August 5, 2021

From the SOFT 2021 Virtual Conference Fitting, Adjusting and Modifying Mobility Equipment – Strategies for Adults and Children with Trisomies Michael J. Workman PT C/NDT

Aquatic Therapy

By Terre Krotzer | August 2, 2021

From the SOFT 2021 Virtual Conference. Aquatic Therapy – Briana Demars OTA

Video – Update 2020 on Seizures, Light Sensitivity and Headaches

By Terre Krotzer | July 22, 2020

Dr. Steven Cantrell – Seizures, Light Sensitivity and Headaches From the SOFT 2020 Virtual Conference Dr. Cantrell’s workshop, Seizures, Light Sensitivity and Headaches will review the many triggers causing seizures and how to protect your child. Nutrition, Eye Protection, and removing triggers around the house will decrease seizure activity. About Dr. Steven Cantrell:Dr. Steven Cantrell…

Video – Trisomy 13 and 18: The Basics

By Terre Krotzer | July 20, 2020

Dr. John Carey – Trisomy 13/18 The Basics Dr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference. Dr. John C. Carey Throughout his career, Dr. Carey has been interested in birth defect syndromes and the care of children with these…

Video – Shining moments from the TRIS project

By Terre Krotzer | July 15, 2020

The first of a series of videos from the SOFT 2020 Virtual Conference. Deborah A. Bruns, Ph.D. shares shining moments from the TRIS project: An overview and review of activities with Deborah A. Bruns, Ph.D. About Deborah A. Bruns Ph.D:Deborah A. Bruns is Professor and Off-campus program coordinator for the Special Education program in the…

Perspectives on the Medical and Genetic Aspects of the Trisomy 18 & 13 Syndromes

By Jack and Dianna Aubele | January 25, 2020

Presented at the 2012 SOFT Conference, St. Louis Dr. Carey began by saying questions were welcomed. He also noted most participants were familiar with the basics of trisomy, so he would emphasize new information. The result was he completed about 10% of his forty prepared slides. The order of information that follows reflects the questions…

The Care Book (English, Spanish, Portuguese)

By SOFT | December 17, 2018

Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new…