Trisomy 9
International Trisomy Alliance (ITA) Publications
            The International Trisomy Alliance (ITA) website is no longer in use. This organization has produced many excellent publications which families can read and download. Links to these publications are below; click on the booklet title to open it as a .pdf file…
Read MoreFinding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health
From the SOFT 2021 Virtual Conference. Dr. Steven Cantrell, OD – Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health.
Read MoreFitting and Adjusting Mobility Equipment
From the SOFT 2021 Virtual Conference Fitting, Adjusting and Modifying Mobility Equipment – Strategies for Adults and Children with Trisomies Michael J. Workman PT C/NDT
Read MoreAquatic Therapy
From the SOFT 2021 Virtual Conference. Aquatic Therapy – Briana Demars OTA
Read MoreVideo – Update 2020 on Seizures, Light Sensitivity and Headaches
Dr. Steven Cantrell – Seizures, Light Sensitivity and Headaches From the SOFT 2020 Virtual Conference Dr. Cantrell’s workshop, Seizures, Light Sensitivity and Headaches will review the many triggers causing seizures and how to protect your child. Nutrition, Eye Protection, and removing triggers around the house will decrease seizure activity. About Dr. Steven Cantrell:Dr. Steven Cantrell…
Read MoreVideo – Trisomy 13 and 18: The Basics
Dr. John Carey – Trisomy 13/18 The Basics Dr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference. Dr. John C. Carey Throughout his career, Dr. Carey has been interested in birth defect syndromes and the care of children with these…
Read MoreVideo – Shining moments from the TRIS project
The first of a series of videos from the SOFT 2020 Virtual Conference. Deborah A. Bruns, Ph.D. shares shining moments from the TRIS project: An overview and review of activities with Deborah A. Bruns, Ph.D. About Deborah A. Bruns Ph.D:Deborah A. Bruns is Professor and Off-campus program coordinator for the Special Education program in the…
Read MorePerspectives on the Medical and Genetic Aspects of the Trisomy 18 & 13 Syndromes
Presented at the 2012 SOFT Conference, St. Louis Dr. Carey began by saying questions were welcomed. He also noted most participants were familiar with the basics of trisomy, so he would emphasize new information. The result was he completed about 10% of his forty prepared slides. The order of information that follows reflects the questions…
Read MoreThe Care Book (English, Spanish, Portuguese)
Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new…
Read MoreLives Worth Living
Fallible Truths: Presentation made by Dr. McCaffrey View & Download this presentation.
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