Printable/Downloadable Brochure for SOFT’s 34th annual medical & family conference,
in beautiful Roanoke VA, July 15 – 19, 2020!
(it’s early, so this brochure will be under construction for several months!)
Scroll down and use the blue links to view preliminary conference information!
<< The print icon is at the end of the brochure, below. >>
The 2020 conference will be held at the historic Hotel Roanoke and Conference Center, 110 Shenandoah Ave NW, Roanoke, VA 24016. Phone: 540-985-5900. The special SOFT rate is $134/night plus tax, single/double/triple/quad. Hotel registration is now open and the special rate code is “SOFT20“. The rate will be available up to three days prior to, and after, the conference. Remember, a hotel registration does NOT register you for the conference; that is separate and should begin in March…see “Registration,” below. The hotel offers on-site self and valet parking. Ask about any costs when registering.
On-line Conference Registration is expected to open in March. A general email announcement will be sent to all members. Costs are as follows:
- Full Conference Adult registration (age 12+) – $125
- Full Conference Children registration (age 5 – 11) – $99
- Children under 5 years old and SOFT children are free
- Picnic-Only Adult (age 12+) registration – $35
- Picnic-Only Child (age 5 – 11) registration – $25
- Picnic AND Auction Adult registration – $45
- Picnic AND Auction Child registration – $35
- If attending ONLY Thursday’s Lunch & Workshops, the cost is $55
NOTE: After midnight, June 30, EST, the Adult registration cost will rise to $140 as the hotel will charge us for reworking their meal supplies and costs.
The SOFT Check-in Room will be open at 9am-7:30pm on Wednesday – location TBA. Please check in as soon as you arrive so you can receive your conference bag which contains essential conference information and much more.
Thursday Medical Forum/Clinics will be provided by some great clinicians; specific locations and times will be announced soon.
This list will be updated as schedules are firmed and events are added, usually in February/March.
- Pediatric ENT
- Genetics 101
- Medical Genetics & Tumor Risk
- Physical Therapy
Workshops will be held Friday, July 17. The 2020 workshop list will be published when it is known…probably in February/March. Keep checking this website for updates, and upon arrival at the conference, refer to your “conference bag” handouts for any last minute updates.:.
- Workshop 1a 0930-1030 TRIS Project, Debbie Burns
- Workshop 2a 1030-1130 Trisomy 9 Parents Panel
- Workshop 3a
- Workshop 4a & b: Mom’s & Pop’s sessions
Thursday night’s Welcome Dinner will feature a Keynote Speaker and events such as the Parade of Stars, Erin Jorgenson scholarship award, other awards, entertainment, and plenty of opportunity to socialize with families and friends!.
SOFT’s Annual “SOFT Friends” video, in memory of Kari Holladay, will be shown during Saturday morning’s Business Meeting. A link explaining the video and how to submit photos will be posted here at the appropriate time. Emailed photos must be sent to Kris by (TBA). Mailed photos must arrive by (TBA).
The Older Siblings Outing will be a River Tubing Party. The cost is $(TBA) which includes transportation, a T-shirt and Lunch. See the schedule for bus loading and return times. Younger Siblings will go to the Science Museum, (Cost is TBA) and lunch will be provided for them as well.
The annual balloon celebration will be held at the Saturday Picnic. Use the registration form to request a balloon release. Conference attendees may also request one on a “walk-in” basis, at the picnic.
The Joey Watson Memorial Conference Attendance Assistance fund exists to help needing and qualifying families who require transportation and registration assistance to attend the conference. The deadline for submitting the form is May 15th and requestors must seek other assistance in their communities prior to asking for help from this fund. These funds are very limited, so start early. Click the blue link above to open the application form.
Transportation Security Administration (TSA) Travel Tips, for those traveling by air with children and/or equipment.