SOFT Virtual Conference 2020

The One Where We Were Quarantined

The 2020 SOFT “Virtual Conference” is right around the corner. We have several events and webinars scheduled including our first ever “Professionals Only” webinar series. The schedule for all webinars is below and each entry includes a link to register for that webinar.

All events with the exception of the Mom’s and Dad’s groups will be recorded and available for replay. The Live stream of the Professionals Only series is intended to be limited to medical professionals. Those webinars will be available to all for replay.

Location: ZOOM online
Dates: Monday, July 13th - Sunday, July 19th
Cost: FREE

Professionals

Webinars

How It Works

Find the event or webinar you want to join and click 'Register' to register for the event. On that date and time just follow the link and join the event. It's that simple.

Medical Professionals Webinar Series

Professionals Only

Monday July 13, 2020
2:00 – 3:00 pm CT
Perspectives on the Care of Children with Trisomy 18 and 13

Dr. John Carey
Professionals Only

Watch Replay

Wednesday July 15th, 2020
2:00 – 4:00 pm CT
Advances in the Care of Newborns & Infants with Trisomy 18 and 13

Dr. Glenn Green & Dr. Shaji Menon
Professionals Only

Watch Replay

Thursday July 16th, 2020
2:00 pm – 3:00 pm CT
Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18

Dr. Meaghann Weaver & Dr. Nicole Birge
Professionals Only

Watch Replay

General Conference Events and Webinars

Keep an eye on this page for updates or additions to the schedule!

Monday July 13
12:00 - 1:00 pm CT
Shining moments from the TRIS project: An overview and review of activities

Deborah A. Bruns, Ph.D

Watch Replay

Monday July 13, 2020
6:00 - 7:00 pm CT
Welcome to Conference & presentation of the SOFT Annual Video. Register to attend and submit your SOFT child/angel's photo(s) for the Annual SOFT Friends Video.

Watch Replay

Submit a Photo

Tuesday July 14th, 2020
2:00 - 3:00 pm CT
Adapted Seating and Mobility

Michael J. Workman PT C/NDT

Watch Replay

Wednesday July 15th, 2020
6:00 pm CT
2020 SOFT Friends Video Premiere

Replay Coming

Thursday July 16th, 2020
12:00 - 1:00 pm CT
Update 2020 on Seizures, Light Sensitivity and Headaches

Dr. Steve Cantrell

Watch Replay

Thursday July 16th, 2020
6:00 - 7:00 pm CT
Candle Lighting Ceremony for our Trisomy Angels
We welcome everyone to join us for the Candle Lighting Ceremony in memory of our SOFT Angels. Submit your angel's name and photo by July 6th to be included in the ceremony. If submitting your angel's name you must also register for the webinar to be able to access the live Zoom event.

Replay Coming

Honor your Angel

Friday July 17th, 2020
11:00 am CT
Support for the Grieving Sibling
Laura Lindroth is with Rainbows for All Children which offer FREE support groups for children and teens (ages 3-18) who are coping with the loss of a family member or another life-altering, traumatic event.

She will speak to families from that perspective.

What can be helpful for the siblings of the children affected by Trisomy?
What grief looks like in a child at different ages.
Signs off grief that are normal and those that may indicate a need for more professional help.

Laura Lindroth

Watch Replay

Friday July 17th, 2020
12:00 - 1:00 pm CT
SOFT Friends Quilt - Create a Quilt Square Project!
Everyone that has been to a conference knows that there are always a number of beautiful quilts that get snatched up at the auction. If you haven’t been to a conference - just know that the quilts are highly sought after items! We thought we would bring that excitement to our virtual conference by creating a SOFT Friends Quilt. If you register for this event, you will be mailed a package with some quilt squares and markers. We are asking you to decorate a square with a star on it. You can decorate the square using the markers or get creative and decorate it how you would like. We will have a webinar with some ideas for how to decorate your star during conference week. We will be asking everyone to mail their completed squares back to us by September 1, 2020 so that they can be assembled into a quilt for the 2021 SOFT Conference auction.