SOFT inspires hope and respects all on their Trisomy journey. SOFT empowers families, celebrates hope, values research, builds community, and values respect.

Expecting a Child with Trisomy?

Welcome to the SOFT Community. We’re so glad you have found us. If you are an expectant parent, congratulations on your precious baby! Our goal is to equip you with knowledge, empower you, and welcome you into our community.

What Do I Do Now?

If you’ve just learned that your child has a Trisomy diagnosis you probably have a lot of questions and concerns. We know this can be a scary time for you. You may feel lost and hopeless but SOFT's goal is to offer you hope, provide information and help you to not feel so alone as you navigate your journey.

Do you have questions?
Contact us or read through the resources and information in the links below.

Leo with his brothers

Family Stories

Read stories written by parents and families in our SOFT community. Our families share real stories and experiences from being diagnosed, raising their child, and dealing with loss.

Parenting a Child

Being the parent of a special needs child can be overwhelming, exhausting and lonely and at the same time be very rewarding and fulfilling. Between finding the right care options for your child, dealing with insurance all while caring for a child with very full time needs sometimes we feel like we just can’t do it. We know you can and we are here to help you along the way.

Become a Member

Are You a Trisomy Parent or Medical Professional?
Become a Member. It's FREE


SOFT Families gathering for the Balloon Celebration at SOFT Conference

SOFT Conference

The Annual Medical & Family Conference

This annual event hosted by SOFT for medical pros and families of Trisomy connects our growing community and offers workshops, outings, and more!

Get Involved


Make a one-time donation or set up a monthly donation to SOFT. See all the ways you can donate.