“…I was free to enjoy my time with her in the womb and not be consumed by worry, fear, guilt, and grief.”
Aspen Alfred, Trisomy 18, 07/11/2014, Spring, TX
Aspen was our ninth child and was due the first week of September. Prenatal ultrasound showed possible issues with her heart and small size but we were unwilling to have test to confirm any diagnosis because the information would not have changed any of our plans for her birth and life. I’m so grateful that I didn’t know what her diagnosis was because I was free to enjoy my time with her in the womb and not be consumed by worry, fear, guilt, and grief. My ignorance was truly blissful. She arrived six weeks early and was taken to the NICU. She was stable on CPAP and oxygen. By the second day they noticed her abdomen was distended. She was immediately transferred to Texas Childrens Hospital for an evaluation that turned into an emergency surgery to close the bowel perforation that was discovered along with many other congenital anomalies. At four days old her FISH test confirmed her diagnosis of Trisomy 18.