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“We held her hands for a short time, but will hold her in our hearts forever.”
London Mann, Trisomy 13, 6/5/2014 – 6/10/2014, Kernersville, NC, USA
We were thrilled to learn that we were pregnant with our 2nd child. We have a beautiful 6 year old daughter who is the light of our lives. At our gender ultrasound at 20 weeks, we were so excited to learn that we were having another girl.
The hesitation that came next was haunting. The tech wanted to get my doctor to discuss some things she “may” see. The doctor came in and made us aware that she had a cleft lip and what looked like a cleft palate. We were sent to a specialist to confirm these findings. At 24 weeks we were told that she did in fact have cleft lip and palate. We were also told that she had what “seemed to be” a cyst in her abdomen and that also there is a vein in the umbilical cord that moves from left to right at 10 weeks of pregnancy and that mine did not move. This could indicate heart problems so a Fetal Echo needed to be performed.
We went the next week and her heart was strong and healthy. I read stories on this site and also did as much research as one would after learning that we may never meet our baby while she was living. God had different plans. I went into labor at 37+5 and had an amazing labor and delivery. Much different from my first.
On June 5th, we were graced with an angel on earth. She defied all odds weighing in at 6 pounds 12 oz and 20 inches long. I examined her from head to toe over a hundred times to look for any other anomalies that are potential for T13 babies. She had one very small lesion on the crown of her head, rocker bottom feet that flattened, clinched fist-that opened on Day 2. She also had low set, folded ears. She never opened her eyes so the love that we shared with her was pure feelings, love and words spoken.
She had her first apnea spell while trying to feed her with a Hayberman nipple (used for babies with cleft lip and palate) She continued to have them and they progressively got worse. God called her home after an amazing, life changing 133 hours and 15 minutes. She fought until the very last second and I thank God for every moment he allowed us to share with her here on earth. We held her hands for a short time, but will hold her in our hearts forever. We love and miss you sweet baby. #loveislondon