“I thank God that my family didn’t let me just give up on her like the doctors were doing.”
Nichelle McKines, Trisomy 18, 2/13/2013, Scott, LA
Nichelle was given an initial diagnosis if T18 when she was 2 days old the pediatrician on call came in and told me that she had some of the common physical traits of T18 and that a genetic test was ordered and the results would take a week. I was released but because of issues Nichelle had to stay in NICU. Since T18 has a high occurrence of heart issues a ped. Cardiologist was contacted and he found that she had VSD ASD and a parachute mitral valve. With all this news the pediatricians kept telling us she wouldn’t make it out of NICU. I thank God that my family didn’t let me just give up on her like the doctors were doing. My husband and I had decided that we would do whatever we had to get our little girl home. Her cardiologist said that she didn’t need surgery so one hurdle down. Because of her feeding issues we did a NG tube so she could still feed. The doctors tried to get us to do a G tube but I couldn’t because I didn’t want to risk infection and she was gaining weight with the NG tube along with her oral feedings. So after 2 weeks we went home and she has been surrounded by love ever since. She is the youngest of 7 kids. Her nurse has been with her since she was 6 weeks old and I couldn’t have picked a better person to take care of my miracle than her. Nichelle turned 3 years old on Feb 13. She no longer has her NG tube she eats orally we are working on introducing solid foods into her diet. She has started home school. Every day with her is a blessing that I don’t take for granted.