SOFT is a primary source of information about Trisomy, Care Management and Family Support
Regan Adeline Lawson
“We are forever grateful to our Regan for the love she brought us & continues to bring us through her legacy.”
Regan Adeline Lawson, Trisomy 18, 11/4/2010 – 11/4/2010, Dyer, IN, USA
The origin and history of the word legacy is described as follows….”body of a person or persons sent on a mission” This in one short word describes our princess Regan Adeline born and carried to Heaven on the same day – November 4, 2010
In February of 2010 after years of trying to have another child, we were thrilled to discover it was finally going happen. Although there were no specific signs of any problems with the pregnancy, something in my heart was telling my mind to be prepared. I do believe that this “unofficial notice” truly made me ready for what was to come.
At our 20 week ultrasound (I denied early blood screenings), what they call “soft markers” were discovered for a congenital abnormality. Trisomy was spoken of numerous times, but no definitive diagnosis could be given at that time. Remaining calm, and staying focused were my priority so that I could ask the correct questions and take mental notes for the research that I needed to do when I got home. Shock, sadness, disbelief, horror, praying that they were wrong when deep down I knew they were right, wanting a glass of wine…………………..ahhhhhhhhhhh! Just like remembering where you were when you learned JFK was shot, Princess Diana was killed, or the twin towers collapsed – I will never forget the feelings of that day.
That day was the day I entered the world of Trisomy, and never left. And that was my daughter’s mission. Everyone is put on this earth for a purpose, whether it be a very short time or a very long time – but their legacy can be of equal length no matter how long they were here in this physical world.
She has taught us the true meaning of not sweating the small stuff, it could be worse, and being thankful for what we have been given. She has introduced me to people from all walks of life whom I never would have met if it wasn’t for her. She has given us the motivation to inform, support, and assist future families beginning this very difficult journey no matter what their personal decisions may be.
We are forever grateful to our Regan for the love she brought us & continues to bring us through her legacy.