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“Keep fighting, my princess!”
Sophia Colley, Trisomy 18, 11/16/2013, Stafford, UK
My journey began on the 16th November 2013; my long awaited baby girl was born . Blue and floppy, she was rushed straight to special care. She weighed 6lbs 2oz; hooked up to machines, looking so fragile. but 5 days later my world fell apart when we were told she had full trisomy 18 and would only live 2 weeks. We were equipped with feeds and information and hurried out of special care as soon as she was well enough.
We came home on the 23rd Nov. I slept with my lil princess next to me in her crib watching her chest rise and fall with every breath. On one occasion I thought I’m not taking this lying down; she can’t fight her corner so I am. So I have battled with hospitals to get her treated fairly. Well she started gaining the pounds and getting stronger. She has learning disability but she is the most happy, patient baby I have ever met. Well she is 10 months old today and is as chubby as ever. Keep fighting, my princess!