SOFT Times Newsletter Library


SOFT’s Library of on-line Newsletters…click on any file to open it, then save it to your PC and you can have it at home to read or print whenever you want.  Or read them on-line.  These are Adobe™  .pdf files.

• Remember that your  .pdf viewer will have + or –  buttons at the top or bottom of the screen so that you can adjust the size of the newsletter as you desire.   This is a function of your viewer and not the web site.

 SOFT Times Newsletter, May 2017-Aug 2018 This catch-up issue contains a great deal of information about SOFT happenings, individual information, the TRIS project, donations and more!

   SOFT Times Newsletter, Jan-Feb-Mar 2017 – Inside this excellent issue:  President’s Corner, 2016 Erin Jorgenson Scholarship, Holladay Grandbabies, Trisomy Awareness Month, The State of Washington Proclamation, Trisomy Awareness All Year, World Trisomy 9 Day, World Patau Syndrome Day, World Trisomy 18 Day, 2017 SOFT Conference, Information, SOFT Conference Wish List, Gov. Signs Simon’s Law, TRIS Project, Professional Viewpoint, 2017 ACMG, SOFT Donations, Teaching Science & Humanity, Trisomy Awareness Day,  What Now?

♥  SOFT Times Newsletter, September, 2016  – Tacoma Conference overview, vision and light sensitivity information and many more articles of interest.
♥  SOFT Times Newsletter, Summer 201623 pages of information about the Tacoma Conference, news from families and more!♥  SOFT Times Newsletter, January 2016 Many articles including the Tacoma Conference, family activities and other items of interest.

 SOFT Times Newsletter, Fall 2015 Next Conference (Tacoma WA),  Back to School Memories, SOFTly Spoken, Build Your Chapter, TRIS, Professional Viewpoint and much more!

 SOFT Times Newsletter, August 2015 – Annual Post-Conference Issue!  This issue contains a complete report, and photos, about the 2015 conference held in Salt Lake City in July!

SOFT Times Newsletter, May 2015:
Sharing Our SOFT Story To Help Educate Others
2015 SOFT Conference Update
Professional Viewpoint                             Run with SOFT
Walking Together                                      Art Auction Announcement
Donations                                                  Trisomy Awareness Month
Ella’s Story                                                Annual SOFT Stroll
TRIS Project                                              SOFTly Spoken
ACMG Meeting

 SOFT Times Newsletter, January 2015:

The President’s Corner
*** 2015 Conference Information ***

16 Years of SOFT Utah Christmas
SOFT of NC News
In Memory of a Special “Little Lady”
SOFTly Spoken: “More or Less”
Hello, my name is Simon
Moments to Remember
SOFT of Utah Conference Committee
     needs Artwork for the Conference
SOFT moms get together in Chicago
Christmas Cards from SOFT families:
The Cooks, Kaufman/Kubena, Careys
Barnes’, Stockmans, Krotzers, Donohues,
Cantrells, Marohns, Wagners


 SOFT Times Newsletter, October 2014:
2014 Conference Photos!                                             Kinder Than Necessary – Pam Healey
SOFT President’s Message – Barb VanHerreweghe   Meet the Wheat Family!
Things Learned – Kris Holladay                                    Sweet Sixteen Morganne Jayme Dye
2014 Conference Wrap-up                                             SOFT 2015 Conference Information
Remembering Philina Lockwood                                  Wonder – R. J. Palacio
First Annual Walk, Run, Roll                                          SOFT Donations
SOFT Utah Annual BBQ

 SOFT Times Newsletter, July 2014:

2014 Conference Information
A Date to Remember – Kris Holladay
President’s Corner – Barb VanHerreweghe
The Trisomy Awareness Month Photo Collage
Professional Viewpoint – John Carey, MD, MPH
(Evolving Medical and Surgical Management  

    of Infants with Trisomy 18)
Donations & Memorials
Look who’s over 30 years old!
Trisomy Awareness Month – Terre Krotzer
Book Recommendations and Reviews
Conference Planning Committee Report
Miss Congeniality – Ashton Troi Wagner
Greta Thompson’s Equestrian Awards
Strength of the Spirit – Pam Healey
International Committee Report
Running with Krissy and Larry
Morghan attends ACMG Clinical Meeting
Angel Wings

SOFT Times Newsletter, April 2014:

2014 Conference Information
SOFTLY Spoken – Kris Holladay
President’s Corner – Barb VanHerreweghe
SOFT of Utah – Happy Holidays; – the Dye’s
Professional Viewpoint – John Carey, MD, MPH
Erin Jorgenson Scholarship
Running with Krissy-Trisomy Awareness
Trisomy Awareness Month – Terre Krotzer
Introducing Ryan – the Steele’s
Remembering Nicholas Wright
Pediatric Teams – Pam Healey
Book Review: Who Lives, Who Dies, Who Decides
Noninvasive Prenatal Testing
Genetic Screening – Pam Healey
Angel Wings


 SOFT Times Newsletter,  January 2014:

The Global Genes Celebration
SOFTLY Spoken: Full Circle
The Storytellers
Dr John Carey at Global Genes Celebration
Dr John Carey’s Global Genes Speech
Donations to SOFT
President’s Corner
About the SOFT 2014 Conference
The Showalters Welcome Ellis Dusenbury
Book Review: Far From the Tree
Albuterol Sulfate Recall Notice
Committee Reports
The Crosier Family Story
Angel Wings
Keeping up with Miss Ella H.
Running with Krissy
Traveling with Stacy
The Mailbag



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