~ Other Trisomy – related publications which might be of interest to our readers ~
SOFT refers you to other publications which might be of interest. Referral does not constitute an endorsement of any publication’s content. Please let us know if you find other books thought to be of interest to our members.
♥ The current issue of the Complex Child e-magazine has articles which will be of interest to our readers. You can also go here to see the many subjects covered in back issues.
Walking the Labyrinth of my Heart: Books about grief, pregnancy and infant loss have already been written. Yet, when I was a pregnant woman walking around in a daze of grief after a prenatal diagnosis of trisomy 18 I did not find comfort in books… A book by Diana Vagianos Armantrout.
Bella’s Gift: A new book by Rick and Karen Santorum about their daughter Bella, who has trisomy 18. You can purchase it here. It is available in both print and e-book formats.
Evy Kristine: A Beautiful Journey. A new advocacy book by Dr Siri Fuglem Berg, a founder of the International Trisomy 13/18 Alliance (ITA), is available from Amazon.
“As a physician I want to share my experience of carrying to term my daughter with trisomy 18. Our journey was beautiful and enriching, in spite of the obstacles we met in the health care system – the pressure to terminate, and the lack of medical care for babies with trisomy 18. I hope the book can be a support for other women carrying to term a baby that did not turn out as expected.”
“Hello My Name is Simon”by Sheryl Crosier and as told by Samuel and Sean Crosier. This book is about a very special relationship among three brothers. Even though Simon, their baby brother has died, his older brothers continue to have conversations with him.
After the Error is available from Amazon.com. In a series of stories from across Canada, this collection points out the considerable human toll that medical errors cause. Victims of medical errors and their families who speak out often do so at considerable emotional, psychological, and financial expense. But their willingness to share their harrowing stories has helped to lay the foundation for numerous patient safety programs and continues to identify problems, provide solutions, and raise awareness.
The book “I Am Not a Syndrome – My Name is Simon” by SOFT parent Sheryl Crosier, is now available from publisher All Star Press – Books that Change Lives. It is offered in all online e-book formats and in paperback form from the publisher’s website. A portion of the proceeds from every sale will go to SOFT.
Embracing Quincy: Our Journey Together [Paperback] A book by Katie Marsh; available from Amazon.com (click the title). A True Story of the Mystical, Unbelievable and Unexplainable. When a high-tech ultrasound at 22 weeks revealed that Quincy may be trisomy 18, the Marsh family was given a choice: to terminate or to continue Embracing Quincy. What happens when you’re told that your baby will probably not live? And if by some miracle she does live, she will be extremely disabled? Embracing Quincy takes you on the path almost never traveled by a couple that is decidedly not religious but very spiritually oriented. It shows you a naked glimpse into their personal lives, their travels and their mystical journey with their trisomy 18 baby Quincy.