Conference Location History

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~  About SOFT Conferences ~

SOFT has held annual family and medical conferences in various cities since 1987.  The annual conference is organized by a host chapter and conference topics have included an overview of Trisomy 18 and Trisomy 13, medical issues affecting children with trisomy, medical clinics, support services available, information on making medical decisions for children with trisomy, and much more.  Typically, about 85 families attend and about 40 SOFT children with Trisomy conditions.  Look under “Events” on the website menu to read the latest conference brochure, for an overview of a typical conference. Attendance numbers for the last several conferences are below the photos on this page.

A list of past conferences and the hospitals hosting the medical clinics follows (attendance numbers are below the photos):

2020 Roanoke, VA (exploratory committee at work)
2019 Ann Arbor MI Univ Mich C.S. Mott Children’s Hospital
2018 Omaha NE – Univ Nebraska
2017 Madison WI – Univ Wisconsin
2016 Tacoma, WA – Mary Bridge Children’s Hospital

2015 Salt Lake  City, UT – Primary Children’s Hospital
2014 Norfolk, VA – Children’s Hospital of the King’s Daughters
2013 Providence, RI – Hasbro Children’s Hospital
2012 St Louis, MO – Cardinal Glennon Children’s Hospital
2011 Chicago, IL – Hope Children’s Hospital, Oak Lawn

2010 Sioux Falls, SD – Sanford Children’s Hospital
2009 Roanoke, VA – Carillion Roanoke Community Hospital
2008 Denver, CO – The Children’s Hospital, Aurora, CO
2007 Salt Lake City – UT – Primary Children’s Hospital
2006 Chicago, IL – Hope Children’s Hospital

2005 Rochester, NY – Strong/Golisano Children’s Hospital
2004 San Antonio, TX – Co-conference w/Chromosome 18 Registry
2003 Salt Lake City, UT – Primary Children’s Medical Center
2002 Chicago, IL – Hope Children’s Hospital
2001 Boston, MA – Feingold Center for Children, Waltham, MA

2000 Orlando, FL -Arnold Palmer Women & Children’s Hospital
1999 Rochester, NY – Univ Rochester/Strong Memorial Hospital
1998 Pittsburgh, PA – Allegheny General Hospital
1997 Salt Lake City, UT – Primary Children’s Medical Center
1996 Durham, NC – Lenox Baker Children’s Hospital

1995 Seattle, WA –  Univ Washington Children’s Hospital
1994 Toronto, Canada – Hospital for Sick Children
1993 Chicago, IL – Loyola Univ Medical Center, Maywood, IL
1992 Baltimore, MD – Kennedy Krieger Institute, Baltimore
1991 Seattle, WA – Univ Washington Children’s Hospital

1990 St Louis, MO – St. John’s Mercy Children’s Hospital, St Louis, MO.
1989 San Francisco, CA – Univ California, San Francisco Medical Center, CA
1988 Philadelphia, PA – Albert Einstein Medical Center, Philadelphia, PA
1987 Salt Lake City, UT – None at this first conference

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Overlook at Roanoke, VA, balloon release 2008

Elizabeth and mom

SOFT conference 2012

Picnic3

Picnic2

Picnic1


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2018 Omaha: Attendance information coming soon….
2017 Madison: Total=285, Adults – 202, Children – 42 SOFT Children – 41
2016 Tacoma: Total=284, Adults – 199, Children – 47, SOFT Children – 38
2015 Salt Lake City: Total=269. Adults – 198, Children – 30, SOFT Children – 41
2014 Norfolk, Va: Total=320. Adults – 217, Children – 59, SOFT Children – 43
2013 Rhode Island: Total=245. Adults – 171, Children – 44, SOFT Children – 30
2012 St Louis – information not available
2011 Chicago: Total=329. Adults – 214, Children – 60, SOFT Children = 55