Make a Real Difference for Trisomy Families
Every family navigating a Trisomy 18, 13, or related diagnosis deserves a community standing beside them. Your time and talent help make that possible.
Why Volunteer with SOFT?
When you give your time to SOFT, you become part of a mission that changes lives — at the moment families need support the most.
Direct Family Impact
Your support reaches families at their most vulnerable moments — a prenatal diagnosis, a NICU stay, or processing grief. Your presence matters profoundly.
Build Community
Become part of a national network of families, clinicians, and advocates united around hope, education, and dignity for every child with Trisomy.
Use Your Skills
Whether you're in healthcare, marketing, event planning, IT, or just passionate about helping, there is a meaningful role where your skills shine.
Grow and Learn
Gain experience in rare genetic conditions advocacy, nonprofit work, medical education, and event coordination alongside nationally recognized experts.
Flexible Commitment
Choose roles that fit your schedule — from one-time conference support to ongoing virtual roles you can do from anywhere in the country.
Employer Matching
Many employers match volunteer hours with donations. Check below to see if your company doubles your impact at no extra cost to you.
How to Get Started
Joining the SOFT volunteer community takes just a few steps. We match you with a role that fits your strengths and schedule.
Browse Open Roles
Review current volunteer opportunities below and find one that matches your interests and availability.
Submit an Application
Complete our quick Gravity Form application. Tell us about yourself and what role excites you most.
Connect With Us
A SOFT team member will reach out within 5 business days to discuss next steps and answer questions.
Start Making Impact
Get oriented, meet your team, and start contributing to a community that changes lives every day.
Current Volunteer Opportunities
We have roles for every skill set and schedule. Click any card to learn more and apply.
Stories & Testimonials Volunteers
We are actively looking for multiple people to reach out to SOFT member families and help gather their stories for the website, social media, and grant applications. Together we amplify voices that change the narrative.
Spanish Language Outreach Volunteers
We need multiple passionate volunteers to help SOFT reach Spanish-speaking families through social media, support meetings, and outreach. We have Spanish-language parent books ready — the more hands, the farther they reach.
New & Expectant Parent Resource Curators
Help make sure families who just received a Trisomy diagnosis have access to the best, most current resources available — from trusted websites to the guides SOFT creates.
Medical Research Knowledge Base Volunteers
We are building a team of volunteers to organize SOFT's library of medical studies and write plain-language summaries families can actually use and share confidently with their child's care team.
Grant Researchers
Find grant opportunities that match SOFT's mission. Great for grad students in public health, social work, or nonprofit management who need real-world project experience.
Grant Writers
We welcome multiple grant writers — experienced or new to grants — to help turn funding opportunities into compelling proposals. The mission sells itself.
Corporate & Community Partnerships Volunteers
We are looking for volunteers across the country to use their networks to connect SOFT with local businesses, civic groups, and faith communities who want to support our mission.
Fundraising Events Volunteers
We welcome multiple volunteers to help with peer-to-peer fundraising campaigns, memorial walks, and giving day strategies like Giving Tuesday. Lend a hand where you can — every bit of help grows what we can do for families.
Conference Scholarship Volunteers
We need multiple volunteers to help manage scholarship applications for families who need financial assistance to attend the annual conference. A meaningful, behind-the-scenes role that removes real barriers for real families.
Social Media Volunteers
We are looking for multiple creative volunteers to help create educational and uplifting content for SOFT's social channels — especially during Trisomy Awareness Month and throughout the year.
Podcast Production Volunteers
We welcome multiple volunteers to help bring the Talking Trisomy podcast to more ears. Support editing, episode notes, guest scheduling, and publishing to YouTube and Spotify. Training available.
Newsletter & Communications Volunteers
We are looking for multiple volunteers to help draft and format SOFT's monthly newsletter for nearly 4,000 member families. The more voices on this team, the richer the content.
Join Our Growing Team — Tell Us Where You Want to Help
Not sure where you fit yet? That is perfectly okay. Tell us a little about yourself and we will find the right place for you. There is room on this team for everyone who cares.
Does Your Employer Match Volunteer Hours?
Many companies convert volunteer hours into real dollars for nonprofits like SOFT. Use the tool to the right to search for your employer's volunteer matching program — you could be doubling your impact with zero extra cost.
Check Your EmployerApply to Volunteer with SOFT
Fill out our volunteer application and a team member will be in touch within 5 business days. Every role matters. Every hour counts.
