Conference Schedule

Indianapolis, Indiana

July 9th-13th, 2025

Wednesday

8:30 am – 4:00 pm | Board Meeting – SOFT Board of Directors

12:00 pm – 7:00 pm | Registration Room Opens

2:00 pm – 5:00 pm | Auction Drop-off Room
Information Paper required

1:00 pm – 2:00 pm | Lunch for Board of Directors
Board members and their families

5:00 pm – 10:00 pm | Memory Room opens
Come honor the trisomy angels.
View pictures and memorabilia of our precious
children

7:00 pm – 9:00 pm | SOFT Conference Meet & Greet
Ice Cream Social
New Family Welcome
Friend of SOFT Award
SOFT Awards

Thursday

7:00 am – 9:00 am | Breakfast

8:00 am – 10:00 pm | Memory Room opens

8:00 am – 5:00 pm | Registration Room opens

10:00 am – 5:00 pm | Auction Drop-off Room, Information Paper required

9:00 am – 10:30 am | Breakout Session #1
Doctor Panel – Hosted by Dr. Marty McCaffrey
Dr.Hammell, Dr. Green, Dr. Braddock, Dr. Scott Showalter, Dr. Mindy Li, Dr. Natalie Darro
Grief Workshop – Dr. Sally Miller
Mike Workman – Physical Therapist / Wheelchair Adjustments & Evaluations
(Appts made at Registration)

10:40 am – 11:40 pm | Breakout Session #2
PTSD – Dr. Will Miller
Trisomy 9 & TRIS Project – Dr. Li & Dr.Debbie Bruns
Tumor Screening in Trisomy 18: An Update – Dr. Stephen Braddock
Mike Workman – Physical Therapist / Wheelchair Adjustments & Evaluations
(Appts made at Registration)

11:50 am – 12:50 pm | Breakout Session #3
Occupational Therapy Workshop – TBD
Telling My Story – Dr. Sally Miller
Epilepsy Workshop
Mike Workman – Physical Therapist / Wheelchair Adjustments & Evaluations
(Appts made at Registration)

1:00 pm – 2:00 pm | SOFT Family/Presenters Lunch

2:30 pm – 4:00 pm | Breakout Session #4
Mom’s Only
Dad’s Only

2:30 pm – 4:00 pm | Medical Advisory Board (Doctors Only)

6:00 pm – 10:00 pm |Welcome Dinner
Parade of Stars – In memory of Zion Lint
Remembering our Angels – In memory of Stacy VanHerreweghe
Keynote Speaker – Michael Budd
SOFT Friends Video
DJ / Dance

Friday

7:00 am – 9:00 am | Breakfast

8:00 am – 10:00 pm | **LAST CALL** Auction Drop-off Room
Information Paper required

9:00 am – 10:00 am | Breakout Session #5
Sib Panel (For Sibs Only)
Medical care of a medically complex family – Dr. Natalie Darro
TRIS – Dr. Debbie Bruns
Special Eye Care for children with Trisomy 18, 13, & 9
Dr. Steve Cantrell
Future Planning – Billie Jo Johnson (Mom to Ava – Trisomy 18)

10:10 am – 11:15 am | Breakout Session #5
Organ Donation – Donate Life America
Kayse Whittaker – Mom of Lila
Billie Jo Johnson – Mom of Ava
Sunglass Fittings – Dr. Steve Cantrell
Open Craft Room

11:30 am – 4:30 pm | Sibling Outing
Younger Sibs – Children’s Museum Indianapolis
Older Sibs – Top Golf
Please pick up lunches before departure (11 am) in the atrium
Load buses at the front entrance (Jenn Sogge / Outing Director)

12:30 pm – 5:00 pm | Medical Clinics
Riley Children’s Hospital – Auxiliary Campus
Lunch to be provided for Clinic Attendees

12:30 pm – 4:00 pm | Remembrance Sharing Time
Memorial Craft
Lunch Provided

5:00 pm | Children return from Sibling Outing

12:00 pm – 7:00 pm | Explore Indianapolis, IN
For those not attending Friday outings or clinics, enjoy the day
Exploring Indianapolis
Lunch & Dinner on your own

5:00 pm – 10:00 pm | Indiana Fever WNBA – Optional / Pre-paid Tickets
Purchase Separately (Transportation on your own)

7:00 pm – 9:00 pm | Family Game Night with prizes (McCaulley Family Game Night Director)
Light Refreshments

Saturday

7:00 am – 9:00 am | Breakfast

8:00 am – 10:00 pm | Memory Room opens
(will be closed from 11:30 am – 4:30 pm)
(make sure that you remove your things from
The memory room after the picnic)

9:00 am – 10:00 am | SOFT Business Meeting
All members welcome

11:30 am | Start loading buses for Picnic
Load buses at the front entrance

12:00 pm – 4:00 pm | SOFT Annual Picnic
Latvian Community Center
Angel Celebration – In memory of Ryan Cantrell

4:30 pm – 7:00 pm | Dinner on your own

7:00 pm – 10:00 pm | Auction
Light Refreshments served