Trisomy 18, Trisomy 13 and Related Chromosome Disorders

The Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) is an  IRS 501(c)(3) non-profit, volunteer organization incorporated in 1980. SOFT has helped families having children with trisomies for over three decades and is recognized as a primary source of information for these disorders.  

 

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Registration for the SOFT 32nd Annual Conference is now closed.
•  Click here to Donate to the conference!
• The annual Balloon Celebration is now closed!

 

 

 Videos and SOFT Photos:

“Lives Worth Living”A presentation by Dr Marty McCaffrey, about Trisomy 18 and 13 (slides – no audio)

“Every Baby is Unique”  A YouTube presentation by Dr Marty McCaffrey, about our children.  Una transcripción en español de su conferencia está disponible aquí.   El video esta aqui en la pagina inicial (homepage).  

Current Recommendations for Health Maintenance  A one-hour video by Dr John Carey

Constipation 101  A 39-minute video presentation by Terre Krotzer and Ann Barnes about this common problem.  Transcript.

Cardiac Surgery in Infants with T13 & T18 – What are the Issues in Decision-Making?  A Video by Dr. John Carey

 
Facebook♥  Social Media:

 SOFT’s public Facebook Page
 SOFT’s private Facebook Group
Join daily discussions & family interactions!
   
 ♥   Tracking Rare Incidence Syndromes:
• The TRIS project’s T18, T13 and T9M modules are now available!
• Each includes a PDF presentation, resource list and glossary of medical terms.
 

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