BLOGS
Trisomy Awareness Month Spotlight – Megan Swanson
What is something unique and special about your child with trisomy that you wish more people knew? It’s hard to put into words how unique and special Dallas is. A boy who had the cards stacked against him before he was even born has grown to be the most happy, loving,...
Trisomy Awareness Month Spotlight – Tyisha Clemmons
What is something unique and special about your child with trisomy that you wish more people knew? We call Titus the "baby, baby" as he is the youngest of 4, (sisters 19 and 12 yrs old and brother 17 yrs old). He is loved, even before he was born. I talk to him about...
Trisomy Awareness Month Spotlight – Rilee Vanlom
What is something unique and special about your child with trisomy that you wish more people knew? Bella has a smile that could melt anyone’s heart. She’s full of sass and knows exactly how to push the limits—doing something she shouldn’t, then flashing the biggest...
Trisomy Awareness Month Spotlight – Kari Adamson
What is something unique and special about your child with trisomy that you wish more people knew? Leila is truly a gift from God and such a blessing to us. She has overcome so many obstacles in her life. I wish more people understood how strong and resilient our kids...
Trisomy Awareness Month Spotlight – Ruth de la Cruz
What is something unique and special about your child with trisomy that you wish more people knew? She is a happy and affectionate girl, she is in 3rd grade and enjoys being with other children, she receives appropriate special education services, Chantal is the joy...
2024 Trisomy 18 Medical Panel – Expert Insights During Trisomy Awareness Month
As part of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) proudly hosted a medical panel dedicated to Trisomy 18 (Edwards syndrome). This recorded session features leading medical professionals who share the latest insights on diagnosis,...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
In recognition of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) was honored to host a special panel discussion focused on Trisomy 13. This expert-led session brought together leading medical professionals to share current insights, research...
SOFT Member Spotlight – Nika Pride
Embracing the Unexpected: Nika Pride’s Journey with NovaIntroduction For many parents, the diagnosis of trisomy 18 can be a life-altering moment, filled with uncertainty and fear. For Nika Pride, the unexpected news came after the birth of her daughter, Nova. In this...
SOFT Member Spotlight – Laura Horvath
Blossoming Through Adversity: Laura Horvath’s Trisomy 18 JourneyIntroduction In the world of rare genetic disorders, few conditions present as many challenges as trisomy 18. For Laura Horvath, a mother whose life took an unexpected turn upon learning of her daughter...
SOFT Member Spotlight – Starla Reese
A Journey of Strength and Devotion: Starla Reese and Hayli’s Trisomy 13 Mosaic StoryIntroduction Navigating life after a rare genetic diagnosis can feel like stepping into the unknown. For Starla Reese, the discovery that her daughter Hayli had Trisomy 13 Mosaic came...