BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
With Gratitude: Honoring Our January 2026 SOFT Donors
SOFT gratefully recognizes our January 2026 donors whose generosity supports families affected by Trisomy 13 and Trisomy 18 through education, remembrance, and community. As we begin 2026, we are deeply grateful for the generosity shown to SOFT in January. Each...
Rose’s Story – Trisomy 18, Advocacy, and the Power of Informed Care
Trisomy 18, Advocacy, and the Power of Informed Care Receiving a prenatal diagnosis of Trisomy 18 (Edwards syndrome) often marks a sudden and disorienting shift for families. What begins as anticipation can quickly become a landscape of medical terminology,...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2026
Trisomy 18 Medical Panel – Trisomy Awareness Month 2026
Living With Trisomy 18:
Choosing The ‘Life Narrative’ For Izzie
Introduction Families who receive a diagnosis like Trisomy 18 are often introduced to their child’s story through statistics, grim predictions, and assumptions about what life will—or will not—look like. Information is fragmented, perspectives are narrow, and hope is...
Trisomy 9: A Parent’s Story of Hope, Progress, and Support
Families navigating a Trisomy 9 diagnosis are often met with uncertainty, limited information, and a wide range of possible outcomes. Because Trisomy 9 is rare and highly variable, many parents find themselves searching for answers that are difficult to locate in one...
SOFT Gifts: Honoring Our December 2025 donors
As 2025 came to a close, SOFT was deeply honored by the generosity shown in December by individuals, families, and organizations committed to supporting those affected by Trisomy 13, Trisomy 18, and related conditions. Each contribution—whether given monthly, in...
Introducing Our New Trisomy 9 Parent Resource Guide
Introducing Our New Trisomy 9 Parent Resource Guide We are honored to share the launch of the Trisomy 9: New and Expectant Parent Resource Guide, a comprehensive new resource created to support families who have received a Trisomy 9 diagnosis during pregnancy or after...
Dawson’s Story: 18 Years with Trisomy 18, Advocacy, and Choosing Joy
Watch the full podcast episode now:YouTube: https://youtu.be/Muud-blNlwQSpotify: https://open.spotify.com/episode/7l2bjulsdxvfZdFUXAhDdO?si=mO2LDU5jQv6Sk8DqKwKJuw When Renae and Josh Bradley welcomed Dawson into their family, they were told he had Trisomy 18 — a...
2025 SOFT Impact Report: Advancing Family-Centered Support for Trisomy 18, Trisomy 13, and Trisomy 9
2025 SOFT Impact Report Families facing a diagnosis of Trisomy 18, Trisomy 13, Trisomy 9, or related conditions often encounter complex medical information, limited resources, and profound emotional uncertainty. At SOFT, our mission is to ensure families are not...








































