BLOGS
Pediatric study opportunity for Trisomy 18/13
University of California San Diego (UCSD) Pediatrics Study Opportunity WHAT: Investigators at UCSD are interested in learning more about parents views and experiences of the medical care provided to their children with trisomy 18 or 13. Specifically, we are interested...
Trisomy Awareness Month Proclamations 2023
2023 Trisomy Awareness Month Begins March 1st! As of March 1, 2023, SOFT has received 2023 Trisomy Awareness Month Proclamations from XX states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get...
2024 Trisomy Awareness Profile Frames & Covers
Help Spread Trisomy Awareness with a Trisomy Awareness Profile Frame and Cover Image. To help our community speak with ONE VOICE to raise Trisomy Awareness SOFT has created Trisomy Awareness Profile Frames and Cover Images for you to use on your Facebook page and...
2024 Trisomy Awareness Month Event Calendar
Click below to register for our upcoming events. Registration link for Family Game Night: Registration link for Angel Remembrance Event For the latest information about 2024 Trisomy Awareness Month, please visit us on FaceBook.
Trisomy Awareness Month Proclamations 2024
2024 Trisomy Awareness Month Begins March 1st! As of March 1, 2024, SOFT has received 2024 Trisomy Awareness Month Proclamations from states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get the...
Trisomy 18 Medical Panel – Trisomy Awareness Month 2024
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
2024 Kari Deann Holladay “SOFT Friends Video” Submission
The ANNUAL “SOFT Friends Video” EVERYONE IS INVITED to submit pictures for the annual Kari Deann Holladay “SOFT Friends Video” a special video presentation honoring all our children through pictures and music. The video will be presented at the 2024 SOFT Conference in...
Trisomy Awareness Month Proclamations 2023
2023 Trisomy Awareness Month Begins March 1st! As of March 1, 2023, SOFT has received 2023 Trisomy Awareness Month Proclamations from XX states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get...
“A SOFT Landing” 2024 Book Presale and Fundraiser
SOFT is partnering with Born Abel for a very special book dedicated to & featuring SOFT kids! Born Abel is donating their storytelling, illustrations to create and publish the first ever SOFT children’s book to help raise money for the 2024 conference next July in...