RESOURCES
Beyond Goodbye
Caitlin’s Story: A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families
A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families Watch and Listen to Caitlin’s Story We invite you to experience Nancy’s story in the format...
Dawson’s Story: 18 Years with Trisomy 18, Advocacy, and Choosing Joy
Watch the full podcast episode now:YouTube: https://youtu.be/Muud-blNlwQSpotify: https://open.spotify.com/episode/7l2bjulsdxvfZdFUXAhDdO?si=mO2LDU5jQv6Sk8DqKwKJuw When Renae and Josh Bradley...
COMING SOON: Room 119 — A Trisomy 13 Story of Love and Courage
Discover Room 119 — Michelle Stewart’s moving true story of baby Adaeze, a three-pound miracle who changed lives through her love and courage.
Honoring RJ’s Light: The Manley Family’s Tribute Shines Bright
On September 18, 2015, Kahle Giesen and RJ’s father welcomed their son, RJ Manley, into the world. Born with Trisomy 18, RJ lived for two precious days. Though his time was short, his life continues...
SOFT 2021 Candle Lighting Remembrance Ceremony
From the SOFT 2021 Virtual Conference This is the replay of the 2021 Candle Lighting Remembrance Ceremony. Join us as we remember and honor our SOFT Angels.
Finding Words for our Grief
From the SOFT 2021 Virtual Conference Cora Welsh, M.A., CCLSRev. Matt Norvell, DMin., M.S., B.C.C. Pediatric Chaplain
Video – Support for the Grieving Sibling
Laura Lindroth, Director of Programming and Community Engagement at Rainbows for All Children, discusses Support for the Grieving Sibling. From the SOFT 2020 Virtual Conference....
International Trisomy Support Groups and Organizations
Provision of information and links does not constitute SOFT USA's endorsement of any group. The International Trisomy 13 and 18 Alliance (ITA) is a volunteer, not-for-profit organization focusing on...






































