How SOFT Remembers
SOFT has a number of ways to celebrate our children. At the annual SOFT Conference we have a Remembrance Outing and a Balloon Celebration, where we remember and pay tribute to our Angels. A Memory Room is also open during Conference for families to display photo albums and other memorabilia of their children. Many also choose to donate to SOFT in honor of a Child.
We also love for members to share stories of their children with us.
Some ideas to create lasting memories:
- Memory Boxes
Read Creating Memories when a Pregnancy Ends for more ideas and ways to create memories for your Angel.
Resources & Stories
2020 SOFT Virtual Conference is coming in July
The 2020 SOFT Virtual Conference planning is underway and we are really excited to share our event with you. The team has been working hard to make...
From the SOFT 2021 Virtual Conference. Aquatic Therapy – Briana Demars OTA
Cardiac Surgeries and Procedures Reported to SOFT, Arrayed by Diagnosis
Carter R – Trisomy 13
“I would do it all again just to have the chance to hold my baby one more time.” On April 4, 2020 my life changed forever. I went into ...
Common Problems of Babies with Trisomy 18 or Trisomy 13
A consistent list of problems and concerns has been reported by parents through the years. Viability of their newborn is their first concern, foll...
Congenital Heart Surgery in Trisomy 13 and 18
From the SOFT 2021 Virtual Conference Professional Panel Congenital Heart Surgery in Trisomy 13 and 18 – An Update and Future Directionswith ...