REMEMBERING A CHILD
SOFT supports families throughout their Trisomy journey, including after they have experienced loss and bereavement. One of the things many families find most important is creating memories with their child.
How SOFT Remembers
SOFT has a number of ways to celebrate our children. At the annual SOFT Conference we have a Remembrance Outing and a Balloon Celebration, where we remember and pay tribute to our Angels. A Memory Room is also open during Conference for families to display photo albums and other memorabilia of their children. Many also choose to donate to SOFT in honor of a Child.
We also love for members to share stories of their children with us.
Creating Memories
Some ideas to create lasting memories:
- Photography
- Memory Boxes
- Mementos
Read Creating Memories when a Pregnancy Ends for more ideas and ways to create memories for your Angel.
Resources & Stories
-
2020 SOFT Virtual Conference is coming in July
The 2020 SOFT Virtual Conference planning is underway and we are really excited to share our event with you. The team has been working hard to make...
-
2024 Trisomy Awareness Month Event Calendar
Click below to register for our upcoming events. Registration link for Family Game Night: Registration link for Angel Remembrance Event For the lat...
-
Aquatic Therapy
From the SOFT 2021 Virtual Conference. Aquatic Therapy – Briana Demars OTA
-
Cardiac Surgeries and Procedures Reported to SOFT, Arrayed by Diagnosis
-
Carter R – Trisomy 13
“I would do it all again just to have the chance to hold my baby one more time.” On April 4, 2020 my life changed forever. I went into ...
-
Common Problems of Babies with Trisomy 18 or Trisomy 13
A consistent list of problems and concerns has been reported by parents through the years. Viability of their newborn is their first concern, foll...
