FAMILY STORIES
Aliana’s Story: Growing Up with Trisomy 9q
Izzy’s Story: Defying Every Expectation with Trisomy 13
Raising Ivy: Life with Trisomy 9 Mosaic
Trisomy 9: A Family’s Journey with Patrick Jerzyk | Talking Trisomy | SOFT
Ryan’s Story: How One Trisomy 18 Family Helped Shape SOFT and Change the Narrative
Caitlin’s Story: A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families
A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families Watch and Listen to Caitlin’s Story We invite you to experience Nancy’s story in the format...
How SOFT Began: A Founding Story for Trisomy Awareness Month 2026
How SOFT Began: A Founding Story for Trisomy Awareness Month 2026 March is Trisomy Awareness Month — a time when families, medical professionals, and advocates unite to share knowledge, raise...
Trisomy 9 Families & Experts Share Stories, Research, and Support | Talking Trisomy
Talking Trisomy: Families, Experts, and the Future of the Trisomy 9 Community For many families, receiving a Trisomy 9 diagnosis can feel isolating and overwhelming. Because Trisomy 9 is rare,...
Understanding Trisomy 9: A Family’s Journey, Changing Perceptions, and Finding Hope
Talking Trisomy Podcast Highlights Real-Life Experiences with Trisomy 9 Families receiving a diagnosis of Trisomy 9 often face uncertainty, limited information, and many unanswered questions....




































