Conference Schedule

Indianapolis, Indiana

July 9th-13th, 2025

Wednesday

8:30 am – 4:00 pm | Board Meeting – SOFT Board of Directors

12:00 pm – 7:00 pm | Registration Room Opens

2:00 pm – 5:00 pm | Auction Drop-off Room
Information Paper required

1:00 pm – 2:00 pm | Lunch for Board of Directors
Board members and their families

5:00 pm – 10:00 pm | Memory Room opens
Come honor the trisomy angels.
View pictures and memorabilia of our precious
children

7:00 pm – 9:00 pm | SOFT Conference Meet & Greet
Ice Cream Social
New Family Welcome
SOFT Awards

Thursday

7:00 am – 9:00 am | Breakfast

8:00 am – 10:00 pm | Memory Room opens

8:00 am – 5:00 pm | Registration Room opens

10:00 am – 5:00 pm | Auction Drop-off Room, Tag required

9:00 am – 10:30 am | Breakout Session #1 (2-3)
Doctor Panel – Hosted by Dr. Marty McCaffrey
Dr. Hammel, Dr. Green, Dr. Braddock, Dr. Scott Showalter,
Dr. Mindy Li, Dr. Natalie Darro, Dr. Joseph Harmon, Dr. Harmon, Dr. Callahan

PTSD – Dr. Will Miller, PhD
Mike Workman – Physical Therapist / Wheelchair Adjustments & Evaluations
(Appointments made at Registration)

10:40 am – 11:40 pm | Breakout Session #2 (2-3)
Trisomy 9 & TRIS Project – Dr. Li & Dr.Debbie Bruns
Tumor screening in Trisomy 18: An Update – Dr. Stephen Braddock
Keeping the Family Connection (Through Your Grief Story) – Dr. Sally Downham Miller, PhD
Mike Workman – Physical Therapist / Wheelchair Adjustments & Evaluations
(Appointments made at Registration)

11:50 am – 12:50 pm | Breakout Session #3 (2-3)
Sensory Input for Quality of Life Improvement – Carrie Kanary, MS,OTR
How we Carry Each Other: Being Generous in our Joy and Pain – Connie Chandler (We Carry Kevin)
Medical/Epilepsy Workshop – Dr. Joseph Harmon
Mike Workman – Physical Therapist / Wheelchair
Adjustments & Evaluations
(Appointments made at Registration)

1:00 pm – 2:00 pm |
SOFT Family Lunch
State Representative Lunch

2:30 pm – 4:00 pm | Breakout Session #4
Mom’s Only
Dad’s Only

2:30 pm – 4:00 pm | Medical Advisory Board
(Medical Professionals Only)

6:00 pm – 10:00 pm | Welcome Dinner (3-4 for setup)
Parade of Stars – In memory of Zion Lint
Remembering our Angels – In memory of Stacy VanHerreweghe
Keynote Speaker – Michael K Budd, MPA
SOFT Friends Video in memory of Kari Deann Holladay
DJ / Dance

Friday

7:00 am – 9:00 am | Breakfast

8:00 am – 10:00 pm | **LAST CALL** Auction Drop-off Room
Tag required

9:00 am – 10:00 am | Breakout Session #5
Sib Panel (For Sibs Only!!)
Medical care of a medically complex family – Dr. Natalie Darro
Special Eye Care for children with Trisomy 18, 13, and 9 Dr. Steve Cantrell
Life Planning – Billie Johnson (Ava’s Mom)

10:10 am – 11:15 am | Breakout Session #6
Organ Donation – Donate Life America (Erin Brown)
Kayse Whittaker – Lila’s Mom
Billie Johnson – Ava’s Mom
Sunglass Fittings – Dr. Steve Cantrell
TRIS – Dr. Debbie Bruns
Craft Room

11:15 am – 4:30 pm | Sibling Outing
Younger Sibs – Children’s Museum Indianapolis (6 -7 volunteers)
Older Sibs – Top Golf (2 volunteers)
Please pick up lunches before departure (11 am) in the atrium
Load buses at the front entrance

12:30 pm – 5:00 pm | Medical Clinics
Riley Children’s Hospital – Auxiliary Campus
Lunch to be provided for Clinic Attendees
Group 1 – Buses load at 11:30 am
Group 2 – Buses load at 1:45 pm

12:30 pm – 4:00 pm | Remembrance Sharing Time
Memorial Craft
Lunch Provided

5:00 pm | Children return from Sibling Outing

12:00 pm – 7:00 pm | Explore Indianapolis, IN
For those not attending Friday outings or clinics, enjoy the day
Exploring Indianapolis
Lunch & Dinner on your own

5:00 pm – 10:00 pm | Indiana Fever WNBA – Optional / Pre-paid Tickets
Purchase Separately (Transportation on your own)

7:00 pm – 10:00 pm | Family Game Night with prizes
Light Refreshments

Saturday

6:00 am – 9:00 am | Breakfast

8:00 am – 10:00 pm | Memory Room opens
(will be closed from 11:30 am – 4:30 pm)
(make sure that you remove your things from
The memory room after the picnic)

9:00 am – 10:00 am | SOFT Business Meeting
Board Results
All members welcome

11:30 am | Start loading buses for Picnic
Load buses at the front entrance

12:00 pm – 4:00 pm | SOFT Annual Picnic
Memorial Celebration – In memory of Ryan Cantrell

4:30 pm – 7:00 pm | Dinner on your own

7:00 pm – 10:00 pm | Auction
Light Refreshments served