THE SOFT LIBRARY
Featuring books from our SOFT community that inspire, educate, and reflect the Trisomy journey.
A Princess Warrior’s Journey of Love and Light.
Born at just 3 pounds and facing the challenges of a rare and undiagnosed genetic disorder, baby Adaeze defied expectations from her very first breath. In the tender pages of Room 119, author Michelle Stewart and illustrator Kiara Hoefsmit share the profound story of a little girl who proved that love transcends time and that even the briefest lives can leave the deepest impressions.
Through Adaeze’s own voice, readers experience her nearly four-month journey in the NICU — a time filled with cuddles, smiles, and an unbreakable bond with her parents. This is not just a story about loss, but a celebration of the extraordinary spirit that touched everyone who met her.
Room 119 offers comfort to families facing similar journeys, honors the dedicated medical professionals who provide compassionate care, and reminds us all that some angels walk among us, however briefly, to teach us about unconditional love.
How special are we both to get to belong to each other?! Me to you. You to me. You were chosen for this journey to be my mama.
Flawlessly capturing the unconditional love between mother and child, Mama’s Heart: Understanding Love in an Unknown Special Needs World offers a glimpse into the life of a loving family navigating the challenges of raising a special-needs daughter. Told from the perspective of the child, this touching tale expresses gratitude and admiration for her mother, who tirelessly balances her career, family life, and the demands of parenthood. Through her eyes, readers witness the strength, resilience, and unwavering love that bind the mother and daughter.
The story celebrates the power of community and the importance of finding support from others facing similar experiences. With vibrant illustrations and a heartfelt message, Mama’s Heart inspires hope, understanding, and a deeper appreciation for the extraordinary bonds that shape our lives.
Praising God in the storm?
Faced with carrying a child who was ‘not compatible with life’, that was just one of the many challenges Cami faced as she walked her precious child home to Heaven. In Walking Her Home, readers will hear first-hand about the pregnancy, life, and death of her daughter as well as how God sustained their marriage and family when it was challenged.
Are you carrying more than you can bear?
Through Cami sharing her background, fears, insecurities, and grief, you will learn how God’s preparation, provision, peace, strength, and joy in circumstances can also be yours.
The SOFT Landing – Another Trisomy Awareness Tale from Born Abel! Created for S.O.F.T., this story gently shares the experience of so many rare trisomy families who are not given hope when their baby is diagnosed, only to learn that their baby is one of the best blessings their family has received! Illustrations feature real children who get to see themselves included as characters in the story and serve as a thoughtful piece of inclusion for the special needs community. As a grassroots non-profit, your support of this book contributes directly to Born Abel’s mission of hope for medical families!
Born Abel exists to highlight and normalize the humanity, worth, and abilities of babies and children born with complex health conditions. We provide mom-to-mom support – connecting families with advocacy resources, helping supply baby and pregnancy necessities, and showcasing these amazingly “abeled” children in colorful, kid-friendly books.
All proceeds from our books go directly to the Born Abel Foundation.
Visit www.BornAbel.org for more resources and to nominate an Abel kid for one of our next books!
How do you move forward after you receive an unexpected diagnosis for your baby? How do you deal with the devastation and chaos? Most importantly, how do you prepare for the range of possibilities you now face? From Diagnosis to Delivery is a compassionate, invaluable tool for parents who are facing a life-limiting diagnosis for their unborn child. Beverly’s own journey through the diagnosis of Trisomy 18 for her daughter Verity gives her a unique perspective into the heartache, challenges, grief, and joy surrounding the pregnancy, delivery, and often (but not always) loss of these rare and beautiful children. Beverly gently encourages advocacy for parents who need to have their voices heard as they navigate a pregnancy with a child they are often told is “incompatible with life.”
From Diagnosis to Delivery helps parents navigate everything on this journey, from receiving the initial diagnosis, finding a medical team that supports the wishes of the parent, advocating after delivery, facing loss, and providing for a medically fragile child. Beverly writes in a conversational tone, putting invaluable information and tools into the hands of the parents who love their children unconditionally.
Have a book to share? Email Nick (nick@trisomy.org) to submit it—our board reviews submissions to ensure they reflect SOFT’s mission of supporting families and changing the narrative.
Expectant Parent Book
Trisomy 18
This book is a resource to help you understand trisomy 18 and the unique details of pregnancy, delivery, and after-care. Let this guide empower you with accurate information and clarify the options you have going forward.
Includes a birth plan & after-care workbook to help prepare your family and your medical team
Trisomy 13
This book is a resource to help you understand trisomy 13 and the unique details of pregnancy, delivery, and after-care. Let this guide empower you with accurate information and clarify the options you have going forward.
Includes a birth plan & after-care workbook to help prepare your family and your medical team
Trisomy 18 Handbook for Families
When your Physician first tells you that your baby may have Trisomy 18 (Edward syndrome) or that this diagnosis is suspected, you will be overwhelmed with questions. The first question usually is, “What is trisomy 18”? This guidebook was written to answer some of those questions.
Trisomy 13 Handbook for Families
When your physician first tells you that your baby may have Trisomy 13 (Patau syndrome) or that this diagnosis is suspected, you will be overwhelmed with questions. The first question usually is “What is trisomy 13?” This book was written to answer some of these questions.
