SOFT – Homepage

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)

 

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The September 2016 issue of the American Journal of Medical Genetics is dedicated to trisomy 18 and 13 conditions.  amjg
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“Lives Worth Living”
A presentation by Dr Marty McCaffrey, about Trisomy 18 and 13, given at the 2017 Madison conference (slides – no audio)

The Tracking Rare Incidence Syndromes (TRIS) project’s T18, T13 and T9M modules are now available here!  Each module includes a PDF presentation, resource list and glossary of medical terms.