Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
Dr John Carey in Italy with 3 trisomy families, 2017
Payton Thompson Poster
Payton selected as Children's Miracle Network Child at Univ of Florida
Kayden-(t18,13tl)-&-Dr.Carey at SOFT conference
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The Tracking Rare Incidence Syndromes (TRIS) project’s T18, T13 and T9M modules are now available here!
Each includes a PDF presentation, resource list and glossary of medical terms.
Here is what one Genetics Counselor has to say about SOFT: “SOFT is an invaluable resource for patients, families impacted by T18 and T13, and also a great resource for myself on staying up to date on best counseling practices for my patients.”