Support Organization for Trisomy 18, 13 and Related Disorders
SOFT is an  I.R.S. 501(c)(3) non-profit, volunteer organization incorporated in 1980. SOFT has helped families having children with trisomies for over three decades and is recognized as a primary source of information about trisomy 18, 13 and related disorders.  

 

 

 

 

 

 

 

 About SOFT/Contact    |   2018 Conference    |    Publications    |   Donations   |    Register   |   Family Stories   |    Surgery Data


   

 

 

Facebook♥  Social Media:
 SOFT’s public Facebook Page
 SOFT’s private Facebook Group
Join daily discussions & family interactions!
 Videos and SOFT Photos:

“Lives Worth Living”A presentation by Dr Marty McCaffrey, about Trisomy 18 and 13 (slides – no audio)

“Every Baby is Unique”  A YouTube presentation by Dr Marty McCaffrey, about our children

Current Recommendations for Health Maintenance  A one-hour video by Dr John Carey

Constipation 101  A 39-minute talk by Terre Krotzer and Ann Barnes about this common problem

  Family & Medical Videos

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 Past Conference Videos and Photos

 SOFT’s Children’s Flickr Photo Gallery

 Slideshows & Special Events

 ♥   Tracking Rare Incidence Syndromes:
• The TRIS project’s T18, T13 and T9M modules are now available!
• Each includes a PDF presentation, resource list and glossary of medical terms.
 
♥  Resources:
 Helpful Organizations
 Helpful Information
 Other Support Groups    
 Erin Jorgenson Scholarship
•  What’s New in SOFT?
•  Tutorials and Forms

♥  This Space is Under Construction!


♥  This Space is Under Construction!

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♥  This Space is Under Construction!