Support Organization for Trisomy 18, 13 and Related Disorders
SOFT is an  I.R.S. 501(c)(3) non-profit, volunteer organization incorporated in 1980. SOFT has helped families having children with trisomies for over three decades and is recognized as a primary source of information about trisomy 18, 13 and related disorders.  





 Click here to open SOFT’s 2018 Conference Brochure which has links to each conference feature and the detailed schedule of events.
Registration is now open – click here to register
Please click here to Donate to the conference!
Please click here to register for SOFT’s annual Balloon Celebration, held at the conference.




 Videos and SOFT Photos:

“Lives Worth Living”A presentation by Dr Marty McCaffrey, about Trisomy 18 and 13 (slides – no audio)

“Every Baby is Unique”  A YouTube presentation by Dr Marty McCaffrey, about our children.  Una transcripción en español de su conferencia está disponible aquí.   El video esta aqui en la pagina inicial (homepage).  

Current Recommendations for Health Maintenance  A one-hour video by Dr John Carey

Constipation 101  A 39-minute video presentation by Terre Krotzer and Ann Barnes about this common problem.  Transcript.

Cardiac Surgery in Infants with T13 & T18 – What are the Issues in Decision-Making?  A Video by Dr. John Carey

Facebook♥  Social Media:

 SOFT’s public Facebook Page
 SOFT’s private Facebook Group
Join daily discussions & family interactions!
 ♥   Tracking Rare Incidence Syndromes:
• The TRIS project’s T18, T13 and T9M modules are now available!
• Each includes a PDF presentation, resource list and glossary of medical terms.