SOFT Homepage

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
SOFT is the internet’s most complete source of information about trisomy 18, 13 and related disorders.

Photos are from the SOFT Photo Gallery & Conferences. Hover your cursor over a photo to STOP the slideshow.  Click an announcement image to be taken to a submission form.

The latest issue of the American Journal of Medical Genetics is dedicated to trisomy 18 and 13 conditions. Dr. John C. Carey, SOFT’s medical advisor, edits the journal.  To read the articles, click the link, scroll down to the desired article and click on it.amjg
The cover photographs were taken by Rick Guidotti, famous photographer and founder of Positive Exposure, at the 2016 SOFT Conference in Tacoma, WA. The children have full trisomy 13 or 18 except for one girl with mosaic trisomy 13.
FacebookVisit SOFT’s public Facebook Page or the private Facebook Group. Join the daily discussions & family interactions!

Click here for  information about SOFT’s 31st annual conference, in Madison, WI, July 19-23, 2017!
 See 2016 Tacoma Conference photo album (password is Tacoma).

Nicholas (t13) 15 mosHave a medical question about your child? Click the photo for a private Q&A

Here is what one Genetics Counselor has to say about SOFT: “SOFT is an invaluable resource for patients, families impacted by T18 and T13, and also a great resource for myself on staying up to date on best counseling practices for my patients.”