SOFT – Homepage

 

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)

Hover your cursor over a photo to STOP the slideshow.  CLICK AN ANNOUNCEMENT IMAGE TO BE TAKEN TO A SUBMISSION FORM.

The September 2016 issue of the American Journal of Medical Genetics is dedicated to trisomy 18 and 13 conditions.  amjg
FacebookVisit SOFT’s public Facebook Page or the private Facebook Group. Join the daily discussions & family interactions!

 2017 Conference photos will be posted as soon as the album is ready.

 See 2016 Tacoma Conference photo album (password is Tacoma).

The Tracking Rare Incidence Syndromes (TRIS) project’s T18, T13 and T9M modules are now available here!  Each includes a PDF presentation, resource list and glossary of medical terms.

Here is what one Genetics Counselor has to say about SOFT: “SOFT is an invaluable resource for patients, families impacted by T18 and T13, and also a great resource for myself on staying up to date on best counseling practices for my patients.”