SOFT Conference 2022

Our Stars Keep Shining

It's been 3 long years but the live, in-person SOFT Annual Conference is back!

SOFT's annual conference is a place for families to connect with each other, learn new things in our forums, clinics and workshops, and remember all the angels who have gone too soon.

Explore this page to see all that is being planned for you this July in Roanoke, VA. Registration is now open.

The 2022 SOFT Conference!

We invite you to join us for the 2022 SOFT Conference. This conference is designed for all of our SOFT families wherever you are on your Trisomy Journey. Also invited are  extended family and friends and the professionals who care for your children.

Where: Roanoke, Virginia
When: July 13 - July 17, 2022

Pricing options:

Full ADULT (ages 12+) Conference Registration (Conference, Workshops, Clinics, Picnic): $149

Full Child (age 5-11) Conference Registration: $119

Children under 5 and SOFT children: FREE

Other Pricing

Adult Picnic-only Registration: $39

Child (ages 5-11) Picnic-only Registration: $25

Adult Picnic & Auction Registration: $49

Child Picnic & Auction Registration: $35

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About the Conference Hotel

The conference will be held at the historic Hotel Roanoke and Conference Center

Address: 110 Shenandoah Ave NW, Roanoke, VA 24016
Phone: 540-985-5900
Special Rate: $135/night* plus tax.

*This rate expires June 11th, so don't wait! You can reserve this rate for your stay up to three days prior to, and after, the conference.

Remember, a hotel reservation does NOT register you for the conference; that is separate. Click the "Register for Conference" button above for your conference registration.

The hotel offers on-site self and valet parking.  Ask about any costs when reserving your room.

The SOFT Registration desk will open on Wednesday July 13th at 1pm. For location and additional information please see the conference schedule.

Please check in as soon as you arrive so you can receive your conference bag which contains essential conference information and much more.

Welcome Dinner

Thursday night’s Welcome Dinner will feature a Keynote Speaker and events such as the Parade of Stars, Remembering our Angels (in memory of Stacy Vanherreweghe), Erin Jorgenson scholarship awards, other awards, entertainment, and plenty of opportunities to socialize with families and friends!

SOFT conference 2012

"SOFT Friends" Annual Video

The Annual Kari Holladay "SOFT Friends" video, in memory of Kari Holladay, will be shown during Saturday morning's Business Meeting.

Click the "More Information" button for all the details on submitting your child's photo. Submission deadline is June 15, 2022. Any photos received after this date can not be included in the video.

Clinics & Workshops

Thursday Medical Forum/Clinics

This year's SOFT Medical Clinics will be held on Thursday, July 14th, 2022 from 11:00 am - 4:00 pm at the conference hotel.

Clinics will be one on one conversations with the following specialized physicians. And, since clinics are being held at the host hotel they will be much easier to attend.

When you register for conference you may indicate up to 3 choices for clinics you would like to attend. Clinics will be filled on a "first come first served" basis.

    • Cardiology - Dr. Menon
    • Pediatric ENT - TBA
    • Genetics - Dr. John Carey
    • Medical Genetics & Tumor Risk - Dr. Stephen Braddock
    • Ophthalmology - Dr. Steve Cantrell
    • Physical Therapy - TBA

 

Workshops

Workshops will be held on Thursday, July 14 and Friday, July 15.

All workshops are subject to change. When you register you will have the opportunity to choose which workshops you would like to attend. Due to the Covid 19 Pandemic attendance will be limited in each workshop and we ask that you attend the workshops that you register for.

Thursday Workshops 

Session 1 & 2: 9:30 am - 11:00 am:

Trisomy 18 and 13 - Dr. John Carey

Trisomy 18, 13. Preventing Seizures, Light Sensitivity, and Headaches - Dr. Steve Cantrell

Session 3: 11:00 am - 12:00 pm

Dynamic Movement & Safety - Dr. Adam Howell & Dr. Lauren Cantrell

Session 4: 2 pm - 4 pm

Complicated Grief / Loss

Session 5: 2 pm - 4 pm

Trisomy 9 and General Trisomy Issues

 

Friday Workshops

10:00 am - 12:00 noon

Dads Only - Sharing Workshop

3:00 pm - 5:00 pm

Moms Only - Sharing Workshop

 

Outings & Events

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Annual SOFT Remembrance Outing

The annual SOFT Remembrance Outing will be held at Taubman Art Museum on Thursday morning. $15 per person. Lunch on your own. See schedule for times.

Siblings Outings

The Older Siblings Outing will be an Escape Room event. The cost is expected to be $30 which includes transportation, a T-shirt, and Lunch.|

Younger Siblings will go to the Science Museum, Cost $25 and lunch will be provided for them as well.

See the schedule for departure and return times.

Picnic

The Picnic and Memorial Celebration will be held in Downtown Roanoke which is within walking distance of Hotel Roanoke.  The picnic will be from 12:00 pm - 4:00 pm.

Picnic will include a catered picnic meal, entertainment, the Ryan Cantrell memorial celebration and other events.

No Transportation will be provided this year due to Covid restrictions.

Ryan Cantrell Memorial Celebration

The annual Ryan Cantrell Memorial Celebration will be held at the Saturday Picnic.

Auction

The Auction will be held Saturday night at the conference hotel. The auction includes both silent and live auctions.

All auction items are donated from the local community as well as from SOFT members across the country and around the world.

Please send your Auction Donation Items to Jamie Lint, PO Box 1074, Raven VA 24639

Memory Room

The Memory Room will be will be open as outlined in the conference schedule. Please bring photo albums or other memorabilia to display! Be sure to remove your belongings prior to closure!

SOFT Families gathering for the Balloon Celebration at SOFT Conference
Wednesday
7:00 am- 10:00 pm Memory Room Open
Adult Changing Open
8:30 am - 10:00 am Board Breakfast
10:00 am - 6:00 pm Board of Directors Meeting
SOFT Board of Directors
1:00 pm - 7:00 pm Registration Room Open
1:00 pm - 2:00 pm Lunch for Board of Directors
Board members & their families
7:00 pm - 9:00 pm SOFT Conference Meet & Greet
Garden Courtyard
Thursday
7:00 am - 10:00 pm Memory Room Open
Adult Changing Room Open
7:00 am - 9:00 am Breakfast
8:00 am - 5:00 pm Registration Room Open
10:00 am - 12:00 pm Remembrance Outing
Taubman Art Museum
Lunch on your own
9:30 am - 11:00 am Breakout Session #1
Trisomy 18 and 13
Dr..John C. Carey
Breakout Sessions #2
Vision / Seizures
Dr. Steve Cantrell
11:00 am - 12:00 pm Breakout Session #3
Dynamic Movement & Safety
Dr Adam Howell & Dr. Lauren Cantrell
10:00 am - 12:00 pm Activity Room
Craft for kids
11:00 am - 4:00 pm SOFT Clinics
Held at the Hotel Roanoke
12:00 pm - 2:00 pm Lunch (on your own)
2:00 pm - 4:00 pm Breakout Sessions #3
Complicated Grief /  Loss
Breakout Sessions #4
Trisomy 9 and General Trisomy Issues
2:00 pm - 4:00 pm Activity Room - SIB Panel
6:00 pm - 10:00 pm Welcome Dinner
Keynote Speaker
Zion Lint Parade of Stars
Remembering our Angels (in memory of Stacy VanHerreweghe)
Erin Jorgenson Scholarship
DJ / Dance
Friday
7:00 am - 10:00 pm Memory Room Open
Adult Changing Room Open
7:00 am - 9:00 am Breakfast
8:00 am - 10:00 am Registration Room Open
9:45 am – 2:00 pm Older Sib Outing
Escape Room
Lunch included
9:45 am - 2:00 pm Younger Sib Outing
Art Museum
Lunch included
10:00 am - 12:00 pm Dad’s Group
10:00 am - 12:00 pm Family Craft Breakout
12:00 pm - 1:30 pm Chapter Chair Lunch
12:00 pm - 2:00 pm SOFT Family Lunch
2:00 pm Youth return from Sib outings
3:00 pm - 5:00 pm Mom’s Group
5:00 pm - 7:00 pm Dinner on your own
7:00 pm - 9:00 pm SOFT Story Night
Speaker: Kris Holladay
Kari Holladay “SOFT Friends”  Video Presentation
Ice Cream / S’more Family Social
Saturday
7:00 am - 5:00 pm Memory Room Open
Adult Changing Room Open
7:00 am - 9:00 am Breakfast
9:00 am - 10:00 am SOFT Business Meeting
New Family Welcome
Election of Board Members
(must be in attendance at meeting to vote)
12:00 pm - 4:00 pm Ryan Cantrell Annual Memorial Picnic and Celebration
4:00 pm - 7:00 pm Dinner on your own
7:00 pm - 10:00 pm Silent Auction / Live Auction
Light Refreshments Served
Sunday  
7:00 am - 9:00 am Breakfast
9:00 am - 9:30 am Non-Denomenatial Church Service
9:30 am Closing

Joey Watson Memorial Conference Attendance Assistance Fund

The Joey Watson Memorial Conference Attendance Assistance fund exists to assist qualifying families with basic conference expenses. Typically this might be help with conference registration fees or a possible hotel night.  The deadline for submitting the form is May 27th and requestors must seek other assistance in their communities prior to asking for help from this fund.  These funds are very limited, so start early.

Notices

Transportation Security Administration (TSA) Travel Tips, for those traveling by air with children and/or equipment.