Save the date

The SOFT 2027 Annual Conference is coming to Charleston South Carolina

WednesdayJuly 21
SaturdayJuly 24
2027

Embassy Suites by Hilton Charleston Airport Hotel & Convention Center

View on map (opens in new tab)

Families affected by Trisomy 18 (Edwards syndrome), Trisomy 13 (Patau syndrome), Trisomy 9 and related rare chromosome disorders are invited to join us in Charleston for four days of medical education, peer support and time together as a community. Hotel booking links, registration and the full schedule are on the way.

Details are on the way

We are building out the 2027 conference now. Each item below will appear here as soon as it is ready, and newsletter subscribers will hear first.

  • Hotel room block and booking link Coming soon
  • Registration and family cost Coming soon
  • Full schedule and event calendar Coming soon
  • Financial assistance for families Coming soon
  • Sponsorship opportunities Coming soon

Looking back at Loveland, Colorado, July 15 to 19, 2026

Thank you for an unforgettable 40th

The SOFT 40th Annual Conference brought families, clinicians and friends together for five days of learning, remembrance and joy. To every family who made the trip, every clinician who gave their time, every volunteer and every donor, thank you. You built this week.

40thannual conference
80+families
5days together
Children with Trisomy 18, Trisomy 13 and related rare chromosome disorders together at the SOFT 40th Annual Conference in Loveland Read the full 2026 conference recap The moments families loved most, the 40th conference awards, and our thanks to every donor, volunteer and unsung hero who made the week possible. Read the recap
Trisomy families at the Saturday picnic at Willow Bend Park during the SOFT 40th Annual Conference in Loveland, Colorado
SOFT families connecting at the 2026 trisomy conference
Children with rare chromosome disorders and their families at the SOFT conference
Siblings of children with Trisomy 18 and Trisomy 13 together at the SOFT 40th Annual Conference
SOFT community celebrating together at the 2026 trisomy conference in Loveland

Thank you to every walker and donor in Trisomy Trek 2026, sponsored by the Sogge family, for helping families get to Loveland. See the Trek (opens in new tab)

Help a family get to Charleston

Your gift helps cover registration and travel barriers for families affected by trisomy conditions, and keeps SOFT support available all year long.