The SOFT 2027 Annual Conference is coming to Charleston South Carolina
Embassy Suites by Hilton Charleston Airport Hotel & Convention Center
View on map (opens in new tab)
Families affected by Trisomy 18 (Edwards syndrome), Trisomy 13 (Patau syndrome), Trisomy 9 and related rare chromosome disorders are invited to join us in Charleston for four days of medical education, peer support and time together as a community. Hotel booking links, registration and the full schedule are on the way.
Details are on the way
We are building out the 2027 conference now. Each item below will appear here as soon as it is ready, and newsletter subscribers will hear first.
- Hotel room block and booking link Coming soon
- Registration and family cost Coming soon
- Full schedule and event calendar Coming soon
- Financial assistance for families Coming soon
- Sponsorship opportunities Coming soon
Looking back at Loveland, Colorado, July 15 to 19, 2026
Thank you for an unforgettable 40th
The SOFT 40th Annual Conference brought families, clinicians and friends together for five days of learning, remembrance and joy. To every family who made the trip, every clinician who gave their time, every volunteer and every donor, thank you. You built this week.
Read the full 2026 conference recap The moments families loved most, the 40th conference awards, and our thanks to every donor, volunteer and unsung hero who made the week possible. Read the recap 




Thank you to every walker and donor in Trisomy Trek 2026, sponsored by the Sogge family, for helping families get to Loveland. See the Trek (opens in new tab)
Help a family get to Charleston
Your gift helps cover registration and travel barriers for families affected by trisomy conditions, and keeps SOFT support available all year long.































