What is something unique and special about your child with trisomy that you wish more people knew?

Ayla was born at 30 weeks and has been a fighter since the day she was born. She is feisty, sweet, and so so strong. Even though she was born 10 weeks early at 2lb 2oz, she has shown the world how much she wants to be here and it is incredible watching her defy the odds every day.

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

I believe it is important to raise awareness about trisomy 18 to give other parents hope for their children’s lives and show the world that these kiddos can live incredible lives and make such a difference in the world. Hearing stories from the trisomy community is what gave us so much hope for Ayla’s life after finding out about her diagnosis.

During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?

This journey is the hardest but most life changing experience we’ve ever been through. There are so many unknowns everyday but you learn to follow your child’s lead and quickly realize you are not in control. We have learned to adapt to a new normal as a family and we have learned that change is okay. It is truly inspiring to watch Ayla grow and learn new things every day at her pace. It has also been incredible watching her older brother adapt to having her home, he has already learned all about her equipment and he thinks his sister is perfect! I absolutely love being able to share Ayla’s story and see what a difference she is already making in the world. We are truly honored to be her parents and experience the beauty of her life firsthand.