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SOFT Member Spotlight – Barbara Llanos

SOFT Member Spotlight – Barbara Llanos

A Journey of Love and Strength: Barbara Llanos and Addesa Vasquez’s Trisomy 18 Story     Introduction When Barbara Llanos first heard the words Trisomy 18, her world changed forever. The journey of parenting a child with a rare genetic condition is filled with...

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SOFT Member Spotlight – Luz Amalia Veloz Gonzalez

SOFT Member Spotlight – Luz Amalia Veloz Gonzalez

A Mother's Journey of Hope and Resilience: Luz Amalia Veloz Gonzalez and Mia Ariely Juárez Velo       Introduction Luz Amalia Veloz Gonzalez's world was turned upside down when she received the news that her daughter, Mia Ariely Juárez Veloz, had been diagnosed...

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SOFT Member Spotlight – Lilianna Wiebe

SOFT Member Spotlight – Lilianna Wiebe

A Parent’s Journey: Lilianna Wiebe and Alyosha Nicodemus     Introduction The journey of parenthood is often unpredictable, filled with joys, challenges, and moments of profound reflection. For Lilianna Wiebe and her husband, the path took an unexpected turn when they...

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SOFT Member Spotlight – Nicole Whitaker

SOFT Member Spotlight – Nicole Whitaker

The Strength of a Mother: A Journey Through Trisomy 13   Introduction Receiving an unexpected medical diagnosis for a child is one of the most life-altering experiences a parent can face. The emotions range from fear and uncertainty to unwavering love and...

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SOFT Member Spotlight – Brittany Diaz

SOFT Member Spotlight – Brittany Diaz

A Journey of Love and Strength: Brittany Diaz and Everlii Raine Joy     Introduction Parenthood is a journey of hope, dreams, and unexpected turns. For Brittany Diaz, this journey took a path she never anticipated when she learned of her daughter’s diagnosis. This is...

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Charlotte Whitaker – Trisomy 13

Charlotte Whitaker – Trisomy 13

Charlotte’s Journey: A Warrior Princess’s Fight Against All Odds   Our journey with Charlotte began long before she was born. At 27 weeks, we received the results of a Non-Invasive Prenatal Test (NIPT), which indicated a high risk for Trisomy 13, also known as...

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