BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month Spotlight – Jrene Anders
What is something unique and special about your child with trisomy that you wish more people knew? Cassandra lived 27 years was full of love and happiness. Why do you believe raising awareness about trisomy conditions is important, and how can others make a...
Trisomy Awareness Month Spotlight – Gina Csontos
What is something unique and special about your child with trisomy that you wish more people knew? His smile and curiosity. He was always very welcoming and loved hugs. Why do you believe raising awareness about trisomy conditions is important, and how can others make...
Trisomy Awareness Month Spotlight – Victoria Rico
What is something unique and special about your child with trisomy that you wish more people knew? She loves music! Tangled is her favorite right now. She is amazing, she loves to fight with her brother and argue with her dad. although she’s non verbal, Ella has just...
Trisomy Awareness Month Spotlight – Erika Quintana
What is something unique and special about your child with trisomy that you wish more people knew? She is always happy and enjoys time with Mom and Dad. Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?...
Trisomy Awareness Month Spotlight – Shannon Nees
What is something unique and special about your child with trisomy that you wish more people knew? Noah was loved, cherished and wanted. We miss him every minute of every day. Why do you believe raising awareness about trisomy conditions is important, and how can...
Trisomy Awareness Month Spotlight – Christina Buebos
What is something unique and special about your child with trisomy that you wish more people knew? When I had my ultrasound and they saw soft markers for Trisomy 18 I got scared and hesitant to get genetic testing done. But with further ultrasound along my pregnancy....
Trisomy Awareness Month Spotlight – Yani Miller
What is something unique and special about your child with trisomy that you wish more people knew? Melia was the strongest fighter we have known. She inspired us every day to keep advocating alongside her and shine the light that she brought to our family. Even during...
Trisomy Awareness Month Spotlight – Niamh Holohan
What is something unique and special about your child with trisomy that you wish more people knew? Casey which means ‘Brave One’ was true to his name who defied odds and got as far as he did on his journey fighting strong. Casey was born sleeping and it was the...
Trisomy Awareness Month Spotlight – Billie Johnson
What is something unique and special about your child with trisomy that you wish more people knew? She was far more than a Dx. She brought light, laughter and most important love to any room she entered. She defied odds and was the strongest person I've ever known....
Trisomy Awareness Month Spotlight – Elizabeth Petersen
What is something unique and special about your child with trisomy that you wish more people knew? Eleanor Jane loves everything. She loves to go places and play. She loves petting her puppy. She makes friends everywhere we go. She is happy all the time. Why do you...