BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy 18 Trisomy 13 Care Collaborative Lurie Childrens
We Need Your Photos! SOFT 40th Annual Conference 2026
Sibling College Scholarship In Memory of Gavin Kowalski
March 2026 Donations: Honoring Families and Supporting the Trisomy Community
March 2026 Donations: Honoring Lives, Supporting Families, and Strengthening Community March was a meaningful month for the SOFT community, marked by generosity, remembrance, and shared commitment to families navigating trisomy diagnoses. Each gift—whether given in...
Caitlin’s Story: A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families
A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families Watch and Listen to Caitlin’s Story We invite you to experience Nancy’s story in the format that works best for you. Whether you prefer watching the conversation...
How SOFT Began: A Founding Story for Trisomy Awareness Month 2026
How SOFT Began: A Founding Story for Trisomy Awareness Month 2026 March is Trisomy Awareness Month — a time when families, medical professionals, and advocates unite to share knowledge, raise visibility, and honor the lives of children and adults living with trisomy...
Trisomy Awareness Month: Medical Panel Answers Family Questions for Talking Trisomy Podcast
Trisomy Awareness Month: Medical Panel Answers Family Questions As part of Trisomy Awareness Month 2026, Talking Trisomy convened a panel of experienced clinicians to address questions submitted by families navigating trisomy 13 and trisomy 18. Hosted by Nick Holliday...
February 2026 Donations: Honoring Lives and Supporting Trisomy Families | SOFT
February 2026 Donations: Honoring Lives and Supporting Trisomy Families | SOFT At SOFT, every donation carries a story. Some are given in celebration—marking birthdays, milestones, and the joy children with trisomy bring to their families. Others are given in...
Trisomy 9 Families & Experts Share Stories, Research, and Support | Talking Trisomy
Talking Trisomy: Families, Experts, and the Future of the Trisomy 9 Community For many families, receiving a Trisomy 9 diagnosis can feel isolating and overwhelming. Because Trisomy 9 is rare, parents often struggle to find reliable, up-to-date information about the...
Understanding Trisomy 9: A Family’s Journey, Changing Perceptions, and Finding Hope
Talking Trisomy Podcast Highlights Real-Life Experiences with Trisomy 9 Families receiving a diagnosis of Trisomy 9 often face uncertainty, limited information, and many unanswered questions. Because Trisomy 9 is a rare chromosome condition, parents and healthcare...







































