BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
SOFT Conference 2025 Highlights | Indianapolis
SOFT Conference 2025 – Highlights from Indianapolis, Indiana We are excited to share the highlight video from the SOFT Conference 2025 in Indianapolis, Indiana! This year marked the 39th SOFT Conference, an incredible gathering of families, children, and medical...
Trisomy Awareness Month Spotlight – Jennifer Trejo
What is something unique and special about your child with trisomy that you wish more people knew? Ava got to work with UCF PT students so they could learn how to help support a baby/toddler with low muscle tone as they built her switch adapted car! Why do you believe...
SOFTLY SPOKEN (Support Organization for Trisomy 18, 13, and Related Disorders)
SOFTLY SPOKEN: “FULL CIRCLE” By Kris Holladay Eleven years ago, I was on a flight from Phoenix to Salt Lake City. About the time we would be flying over the Grand Canyon, the pilot speaking from the cockpit, alerted us to the spectacular view out the left side of the...
SOFT Utah Family BBQ 2025
Utah SOFT Families Annual BBQ 2025 | Trisomy 13 & Trisomy 18 Community
Trisomy Awareness Month Spotlight – Amiee Dillingham
What is something unique and special about your child with trisomy that you wish more people knew? That each child is their own and can surprise you with how much they are willing to fight, but you have to give them the chance! Don’t give up hope! God has a plan for...
Trisomy Awareness Month Spotlight – Allison Hamilton Thompson
What is something unique and special about your child with trisomy that you wish more people knew? Asmond is the happiest little boy. It doesn't matter what life throws at him, he faces it all with joy. Why do you believe raising awareness about trisomy conditions is...
Trisomy Awareness Month Spotlight – Heidi Murphy
What is something unique and special about your child with trisomy that you wish more people knew? Sajjona loves to keep moving! She loves going on adventures and has been on top of cannon mountain in NH. She does not like to be stationary. She loves Art, classical...
Trisomy Awareness Month Spotlight – Susan Aragona
What is something unique and special about your child with trisomy that you wish more people knew? Aniella is always smiling. She is easily entertained and loves attention. She has a laugh that is contagious and a heart that is very forgiving. Why do you believe...
Trisomy Awareness Month Spotlight – Ana Lucía Simbaña Vásquez
What is something unique and special about your child with trisomy that you wish more people knew? Romina was the happiest baby girl... She was truly loved by me... I loved her every second I could... Now, she is my ángel in the sky and I live honores her memory......
Trisomy Awareness Month Spotlight – Gina Reed
What is something unique and special about your child with trisomy that you wish more people knew? He is a very lovable kid smiles all the time he’s learning how to count count money, adding and subscribe distracting something that I was told they would never do was...