BLOGS

American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care

American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care

FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...

read more
Caitlin’s Story: A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families

Caitlin’s Story: A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families

A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families Watch and Listen to Caitlin’s Story We invite you to experience Nancy’s story in the format that works best for you. Whether you prefer watching the conversation...

read more
Trisomy 9 Families & Experts Share Stories, Research, and Support | Talking Trisomy

Trisomy 9 Families & Experts Share Stories, Research, and Support | Talking Trisomy

Talking Trisomy: Families, Experts, and the Future of the Trisomy 9 Community For many families, receiving a Trisomy 9 diagnosis can feel isolating and overwhelming. Because Trisomy 9 is rare, parents often struggle to find reliable, up-to-date information about the...

read more

Search All Blog