BLOGS
2024 SOFT Conference Workshop: Cardiac Surgery In Infants with Trisomy 18 and 13
This workshop was presented at the 2024 SOFT Conference in Minneapolis, MN on July 12, 2024.Please note that the Doctor Q&A is also included on this video.
Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes
Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes. Presentation occured at the Grand Rounds on July 12, 2024 in Saint Paul, Minnesota.
The SOFT Nominating Committee Is Pleased To Announce
Hello SOFT Membership – We are excited for the annual SOFT Conference this summer in Bloomington MN, July 10-14, 2024. The Nominating Committee is pleased to announce the opportunity to consider joining the SOFT Board of Directors. There is one director seat available...
Pediatric study opportunity for Trisomy 18/13
University of California San Diego (UCSD) Pediatrics Study Opportunity WHAT: Investigators at UCSD are interested in learning more about parents views and experiences of the medical care provided to their children with trisomy 18 or 13. Specifically, we are interested...
Trisomy Awareness Month Proclamations 2023
2023 Trisomy Awareness Month Begins March 1st! As of March 1, 2023, SOFT has received 2023 Trisomy Awareness Month Proclamations from XX states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get...
2024 Trisomy Awareness Profile Frames & Covers
Help Spread Trisomy Awareness with a Trisomy Awareness Profile Frame and Cover Image. To help our community speak with ONE VOICE to raise Trisomy Awareness SOFT has created Trisomy Awareness Profile Frames and Cover Images for you to use on your Facebook page and...
2024 Trisomy Awareness Month Event Calendar
Click below to register for our upcoming events. Registration link for Family Game Night: Registration link for Angel Remembrance Event For the latest information about 2024 Trisomy Awareness Month, please visit us on FaceBook.
Trisomy Awareness Month Proclamations 2024
2024 Trisomy Awareness Month Begins March 1st! As of March 1, 2024, SOFT has received 2024 Trisomy Awareness Month Proclamations from states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get the...