BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month Spotlight – Kristin Conzalino
What is something unique and special about your child with trisomy that you wish more people knew? Noralee made quite an impact in her short time here, not only for her parents, her brothers and sister, but for the many people who hear her story and know that each...
Trisomy Awareness Month Spotlight – Karla Webster
What is something unique and special about your child with trisomy that you wish more people knew? Reggie has been our sunshine for so many years. He's Amazing God has blessed us. He got diagnosed the day he was born March 11,1992 He will be 33 years old They said he...
Trisomy Awareness Month Spotlight – Lori Pierce
What is something unique and special about your child with trisomy that you wish more people knew? Stephanie gives the biggest & best hugs & has the most forgiving heart!! She loves everyone & always has a smile even when she's hurting. Why do you believe...
Trisomy Awareness Month Spotlight – Rona Tapia
What is something unique and special about your child with trisomy that you wish more people knew? We were told before she was born that her hands would be overlapping and that Hope would have rocker-bottom feet; however, none of these issues were present or...
Trisomy Awareness Month Spotlight – Kristen Capps
What is something unique and special about your child with trisomy that you wish more people knew? That anything is possible living with Mosaic Trisomy 13. Why do you believe raising awareness about trisomy conditions is important, and how can others make a...
Trisomy Awareness Month Spotlight – Alyssa Preston
What is something unique and special about your child with trisomy that you wish more people knew? Although being born with a VSD, narrowed aorta, one working eye, enlarged kidneys and so much more he was the happiest baby I’ve ever seen Why do you believe raising...
Trisomy Awareness Month Spotlight – Lani B
What is something unique and special about your child with trisomy that you wish more people knew? He was always HAPPY! His smile will light up the whole room. This babies are so special. Why do you believe raising awareness about trisomy conditions is important, and...
Trisomy Awareness Month Spotlight – Angela Rogers
What is something unique and special about your child with trisomy that you wish more people knew? She was fighter and touched so many lives. Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference? It is so...
Trisomy Awareness Month Spotlight – Linda Sedillo
What is something unique and special about your child with trisomy that you wish more people knew? Rubi smiles with her eyes, it's called smizing. She is always conveying true joy with her smile. Why do you believe raising awareness about trisomy conditions is...
Trisomy Awareness Month Spotlight – Ruth Mast
What is something unique and special about your child with trisomy that you wish more people knew? Tirzah had a cleft lip and palate, but a cleft specialist was able to find a bottle that would work for her mouth. She was so tiny but very precious and sweet, just a...