FAMILY STORIES
COMING SOON: Room 119 — A Trisomy 13 Story of Love and Courage
Discover Room 119 — Michelle Stewart’s moving true story of baby Adaeze, a three-pound miracle who changed lives through her love and courage.
Living in the Moment with Bree: A Family’s Journey with Trisomy 13
Discover Bree’s story — a powerful short film about a family’s journey with Trisomy 13, shared by Holland Bloorview Kids Rehabilitation Hospital.
SOFT Newsletter October
Dear SOFT Families and Friends, As we move into the final months of the year, I’m encouraged by the incredible progress we’re seeing across the SOFT community. From new educational resources to...
Honoring RJ’s Light: The Manley Family’s Tribute Shines Bright
On September 18, 2015, Kahle Giesen and RJ’s father welcomed their son, RJ Manley, into the world. Born with Trisomy 18, RJ lived for two precious days. Though his time was short, his life continues...
Submit Your Child’s Story – Theo Gonzalez
A Life Measured in Love: Remembering Our Miracle, Theo Our Son, Our Fighter We found out early in my second trimester that our baby boy had Trisomy 13 — a rare and severe genetic condition. From...
Trisomy Spotlight – Chapman
What is something unique and special about your child with trisomy that you wish more people knew? Chapman was so aware! He had the best clenched fists ever. His hands were my favorite! His eyes...
Trisomy Awareness Month Spotlight – Heidi Gano
What is something unique and special about your child with trisomy that you wish more people knew? Aryabelle is a truly unique individual. Despite her diagnosis, she is generally a cheerful baby...
Trisomy Awareness Month Spotlight – Mira Lopez
What is something unique and special about your child with trisomy that you wish more people knew? She graduated, went to prom and visit her sister and family in South Dakota 3 weeks prior to her...
Trisomy Awareness Month Spotlight – Diana Moran
What is something unique and special about your child with trisomy that you wish more people knew? Every case is different, we should give all kids a chance. Why do you believe raising awareness...








































