FAMILY STORIES
Charlotte Whitaker – Trisomy 13
Charlotte’s Journey: A Warrior Princess’s Fight Against All Odds Our journey with Charlotte began long before she was born. At 27 weeks, we received the results of a Non-Invasive Prenatal...
Keila S – Trisomy 13
Keila’s Journey: Embracing Life with Trisomy 13 Keila is an extraordinary young woman who was diagnosed with Trisomy 13 during infancy. While I suspect she has the mosaic form of the...
Isabel De Mingo Del Pueyo – Trisomy 13
Isabel’s Story: A Journey of Resilience and Joy Our journey with Isabel began with a life-changing diagnosis during the 22nd week of pregnancy: full Trisomy 13. The medical advice we received...
Bud-William Muse – Partial Trisomy 13 and 17
Celebrating Bud: A Specially-Abled Blessing On January 20, 1993, my son, William "Bud" H. Muse, was born with a rare chromosome abnormality: Partial Trisomy 13 and 17 (long arm 13 and short...
Daniela Viviana Rodriguez – Trisomy 18
A Mother’s Love: Remembering Daniela Viviana In 2023, I was blessed to conceive naturally at 45 years old with my eighth child. It was a miraculous experience, coming 30 years after I first...
Alejandro S – Trisomy 18
My baby is 8 month old. He's a really happy boy. When he born they told us he wasn't going to make it. They didn't want to do his heart surgery so we started to look for a different hospital. We got...
Madilyn F – Trisomy 18
"We spent many wonderful hours just enjoying our sweet little girl. There are many things I wish could have been different but I will always treasure the time I had with Madilyn." At our 20 week...
Krissy Krotzer – Trisomy 18
"This little girl, who cannot do anything to care for herself, is so filled with love that no matter how much she needs; she still gives far more than she takes. She is a beacon of light. She has...
Tabitha E – Trisomy 18
"Whenever one of us needs a pick-me-up, we can always count on Tabitha to respond to snuggles with affectionate smiles. Although Tabitha may not contribute to society in the same way as her...