FAMILY STORIES
Trisomy Awareness Month Spotlight – Megan Swanson
What is something unique and special about your child with trisomy that you wish more people knew? It’s hard to put into words how unique and special Dallas is. A boy who had the cards stacked...
Trisomy Awareness Month Spotlight – Tyisha Clemmons
What is something unique and special about your child with trisomy that you wish more people knew? We call Titus the "baby, baby" as he is the youngest of 4, (sisters 19 and 12 yrs old and brother...
Trisomy Awareness Month Spotlight – Rilee Vanlom
What is something unique and special about your child with trisomy that you wish more people knew? Bella has a smile that could melt anyone’s heart. She’s full of sass and knows exactly how to push...
Trisomy Awareness Month Spotlight – Kari Adamson
What is something unique and special about your child with trisomy that you wish more people knew? Leila is truly a gift from God and such a blessing to us. She has overcome so many obstacles in her...
Trisomy Awareness Month Spotlight – Ruth de la Cruz
What is something unique and special about your child with trisomy that you wish more people knew? She is a happy and affectionate girl, she is in 3rd grade and enjoys being with other children, she...
SOFT Member Spotlight – Nika Pride
Embracing the Unexpected: Nika Pride’s Journey with NovaIntroduction For many parents, the diagnosis of trisomy 18 can be a life-altering moment, filled with uncertainty and fear. For Nika Pride,...
SOFT Member Spotlight – Laura Horvath
Blossoming Through Adversity: Laura Horvath’s Trisomy 18 JourneyIntroduction In the world of rare genetic disorders, few conditions present as many challenges as trisomy 18. For Laura Horvath, a...
SOFT Member Spotlight – Starla Reese
A Journey of Strength and Devotion: Starla Reese and Hayli’s Trisomy 13 Mosaic StoryIntroduction Navigating life after a rare genetic diagnosis can feel like stepping into the unknown. For Starla...
SOFT Member Spotlight – Meredith Willard
One Day at a Time: Meredith Willard’s Journey with Rose and Trisomy 18Introduction When a parent first hears the words “Trisomy 18,” their world can suddenly feel unfamiliar and overwhelming. For...