FAMILY STORIES
SOFT Member Spotlight – Laura Horvath
Blossoming Through Adversity: Laura Horvath’s Trisomy 18 JourneyIntroduction In the world of rare genetic disorders, few conditions present as many challenges as trisomy 18. For Laura Horvath, a...
SOFT Member Spotlight – Starla Reese
A Journey of Strength and Devotion: Starla Reese and Hayli’s Trisomy 13 Mosaic StoryIntroduction Navigating life after a rare genetic diagnosis can feel like stepping into the unknown. For Starla...
SOFT Member Spotlight – Meredith Willard
One Day at a Time: Meredith Willard’s Journey with Rose and Trisomy 18Introduction When a parent first hears the words “Trisomy 18,” their world can suddenly feel unfamiliar and overwhelming. For...
SOFT Member Spotlight – Barb VanHerreweghe
A Lifetime of Advocacy and Love: Barb VanHerreweghe and Stacy’s Trisomy 18 JourneyIntroduction When Barb VanHerreweghe learned that her daughter, Stacy Lynn VanHerreweghe, had Full Trisomy 18, she...
SOFT Member Spotlight – Angela Salazar-Beaugez
More Than a Diagnosis: Angela Salazar-Beaugez and Bella’s Journey with Trisomy 18Introduction When parents receive a trisomy diagnosis, the world often feels like it’s falling apart. For Angela...
SOFT Member Spotlight – Gina Csontos
From Fear to Family: Gina Csontos and Mark's Trisomy 13 JourneyIntroduction Receiving a diagnosis of a chromosomal condition can turn a parent's world upside down. For Gina Csontos, the news that...
Trisomy Awareness Month Spotlight – Theresa Conaway
What is something unique and special about your child with trisomy that you wish more people knew? Emma is a sassy 11 year old with the best personality. She's always in a good mood. She loves...
Trisomy Awareness Month Spotlight – Nidelsa Caminero
What is something unique and special about your child with trisomy that you wish more people knew? He's Friendly and lovely child. He enjoys that his siblings read books for him. But the most...
Trisomy Awareness Month Spotlight – Katrina Cruzado
What is something unique and special about your child with trisomy that you wish more people knew? He has esophageal atresia. Despite having small physical size, he was a fighter. Why do you believe...