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Charlotte Whitaker – Trisomy 13
Charlotte’s Journey: A Warrior Princess’s Fight Against All Odds Our journey with Charlotte began long before she was born. At 27 weeks, we received the results of a Non-Invasive Prenatal...
Keila S – Trisomy 13
Keila’s Journey: Embracing Life with Trisomy 13 Keila is an extraordinary young woman who was diagnosed with Trisomy 13 during infancy. While I suspect she has the mosaic form of the...
Isabel De Mingo Del Pueyo – Trisomy 13
Isabel’s Story: A Journey of Resilience and Joy Our journey with Isabel began with a life-changing diagnosis during the 22nd week of pregnancy: full Trisomy 13. The medical advice we received...
Bud-William Muse – Partial Trisomy 13 and 17
Celebrating Bud: A Specially-Abled Blessing On January 20, 1993, my son, William "Bud" H. Muse, was born with a rare chromosome abnormality: Partial Trisomy 13 and 17 (long arm 13 and short...
Daniela Viviana Rodriguez – Trisomy 18
A Mother’s Love: Remembering Daniela Viviana In 2023, I was blessed to conceive naturally at 45 years old with my eighth child. It was a miraculous experience, coming 30 years after I first...
2024 SOFT Conference Workshop: Cardiac Surgery In Infants with Trisomy 18 and 13
This workshop was presented at the 2024 SOFT Conference in Minneapolis, MN on July 12, 2024.Please note that the Doctor Q&A is also included on this video.
Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes
Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes. Presentation occured at the Grand Rounds on July 12, 2024 in Saint Paul, Minnesota.
The SOFT Nominating Committee Is Pleased To Announce
Hello SOFT Membership – We are excited for the annual SOFT Conference this summer in Bloomington MN, July 10-14, 2024. The Nominating Committee is pleased to announce the opportunity to consider...