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2024 Trisomy 18 Medical Panel – Expert Insights During Trisomy Awareness Month
As part of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) proudly hosted a medical panel dedicated to Trisomy 18 (Edwards syndrome). This recorded session features leading...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
In recognition of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) was honored to host a special panel discussion focused on Trisomy 13. This expert-led session brought together...
SOFT Member Spotlight – Nika Pride
Embracing the Unexpected: Nika Pride’s Journey with NovaIntroduction For many parents, the diagnosis of trisomy 18 can be a life-altering moment, filled with uncertainty and fear. For Nika Pride,...
SOFT Member Spotlight – Laura Horvath
Blossoming Through Adversity: Laura Horvath’s Trisomy 18 JourneyIntroduction In the world of rare genetic disorders, few conditions present as many challenges as trisomy 18. For Laura Horvath, a...
SOFT Member Spotlight – Starla Reese
A Journey of Strength and Devotion: Starla Reese and Hayli’s Trisomy 13 Mosaic StoryIntroduction Navigating life after a rare genetic diagnosis can feel like stepping into the unknown. For Starla...
SOFT Member Spotlight – Meredith Willard
One Day at a Time: Meredith Willard’s Journey with Rose and Trisomy 18Introduction When a parent first hears the words “Trisomy 18,” their world can suddenly feel unfamiliar and overwhelming. For...
SOFT Member Spotlight – Barb VanHerreweghe
A Lifetime of Advocacy and Love: Barb VanHerreweghe and Stacy’s Trisomy 18 JourneyIntroduction When Barb VanHerreweghe learned that her daughter, Stacy Lynn VanHerreweghe, had Full Trisomy 18, she...
SOFT Member Spotlight – Angela Salazar-Beaugez
More Than a Diagnosis: Angela Salazar-Beaugez and Bella’s Journey with Trisomy 18Introduction When parents receive a trisomy diagnosis, the world often feels like it’s falling apart. For Angela...