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SOFT invites you to meet our children through photos provided by families and scripted by a parent from the SOFT Trisomy Awareness committee. Come and “enjoy the SOFT rainbow” of life and love with words to make you smile at www.trisomy.org. New photos will be featured each day in March.
Public Facebook Group: Support Organization for Trisomy (SOFT)
News and Events
FREE – FREE – FREE: SOFT membership is now free – simply register at no cost by selecting the “Membership” tab on the Home page’s menu…at the top of the page.
March 31, 2013
Celebrating Bella: Our Gift From God
March is also Trisomy Awareness Month. For my family, this has become a time to celebrate the life of our daughter Bella. Bella was born almost five years ago with trisomy 18, a severe genetic condition that I believe makes every day with her a gift …
March 28, 2013
Gabby has mosaic trisomy 14, a rare disorder. See Fox8 news interview with Gabby, the soon-to-be winner of the Miss Amazing NC pageant!
March 27, 2013
♥ St. Louis Mom’s Book Battles Trisomy Misconceptions: ST. LOUIS, MO (KTVI). Trisomy is a genetic disorder that most of us know little about it. Sheryl Crosier of St. Louis is helping dispel misconceptions and raise awareness with her new book, “I Am Not A Syndrome — My Name Is Simon”.
March 26, 2013
♥ Breaking NEWS - Listen to an interview with Jill DelSignore, Mother to Giuliana, living with trisomy 18. Live interview sharing there is a future BEYOND diagnosis of a trisomy syndrome. Thank You WKBN for always helping families stay informed.
Guest Interviews – WKBM – 27 First News – Local News – Youngstown, Warren, Columbiana, Ohio – Sharon http://www.wkbn.com/
♥ Noah’s Never Ending Rainbow Meet The Jackson 5. Our friends Tim and Anne Jackson (Dad and Mom to handsome Samuel who has Trisomy 13) work in their local school system and have involved them in Trisomy Awareness Month for the past three years now. They have a dress code; no employee in the school system or student in grades 5-12 are allowed to wear blue jeans to school. During the month of March prior to spring break, any faculty, staff or student in Milan Middle School or Milan High School can pay $1 every Friday and will be allowed to wear jeans on those days. The faculty and staff at Milan Elementary School will be allowed to wear jeans every Friday in March for a one time donation of $5. Drum roll please…The Jackson 5 and the students, faculty & staff of Milan Special School District raised $2,000.00 for Trisomy Awareness Month ‘GENE Fridays’ to be split between Noah’s Never Ending Rainbow and SOFT – Support Organization for Trisomy 18, 13, and Related Disorders, WHOHOO! You are all simply TRImazing and we can’t thank you enough. Awareness within the schools is priceless…WTG Jackson 5, we so ♡ you! Consider doing something similar within your child’s school or your place of employment. Let the MARCH for Trisomy awareness continue…
March 24, 2013
♥ BBC Three Counties Radio – Iain Lee, Edwards syndrome, Hertfordshire expansion and club or Country? Parents fight for treatment for their 14 week old daughter who is “incompatible with life” Listen to this BBC Radio (England) program about a parent’s fight for medical treatment for their Trisomy 18 child. Go to the 2 hour, 3 minute point of the broadcast to hear this segment.
March 21, 2013