BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Living With Trisomy 18:
Choosing The ‘Life Narrative’ For Izzie
Introduction Families who receive a diagnosis like Trisomy 18 are often introduced to their child’s story through statistics, grim predictions, and assumptions about what life will—or will not—look like. Information is fragmented, perspectives are narrow, and hope is...
Trisomy 9: A Parent’s Story of Hope, Progress, and Support
Families navigating a Trisomy 9 diagnosis are often met with uncertainty, limited information, and a wide range of possible outcomes. Because Trisomy 9 is rare and highly variable, many parents find themselves searching for answers that are difficult to locate in one...
SOFT Gifts: Honoring Our December 2025 donors
As 2025 came to a close, SOFT was deeply honored by the generosity shown in December by individuals, families, and organizations committed to supporting those affected by Trisomy 13, Trisomy 18, and related conditions. Each contribution—whether given monthly, in...
Introducing Our New Trisomy 9 Parent Resource Guide
Introducing Our New Trisomy 9 Parent Resource Guide We are honored to share the launch of the Trisomy 9: New and Expectant Parent Resource Guide, a comprehensive new resource created to support families who have received a Trisomy 9 diagnosis during pregnancy or after...
Dawson’s Story: 18 Years with Trisomy 18, Advocacy, and Choosing Joy
Watch the full podcast episode now:YouTube: https://youtu.be/Muud-blNlwQSpotify: https://open.spotify.com/episode/7l2bjulsdxvfZdFUXAhDdO?si=mO2LDU5jQv6Sk8DqKwKJuw When Renae and Josh Bradley welcomed Dawson into their family, they were told he had Trisomy 18 — a...
2025 SOFT Impact Report: Advancing Family-Centered Support for Trisomy 18, Trisomy 13, and Trisomy 9
2025 SOFT Impact Report Families facing a diagnosis of Trisomy 18, Trisomy 13, Trisomy 9, or related conditions often encounter complex medical information, limited resources, and profound emotional uncertainty. At SOFT, our mission is to ensure families are not...
November 2025 Donor Thank You | Honoring Our SOFT Community of Trisomy Support
With Gratitude: Honoring Our November 2025 Donors As we reflect on the month of November and enter the season of gratitude, we want to pause and offer our sincere thanks to the individuals and families who supported SOFT during this time. Each gift—whether given in...
A Trisomy 13 Journey of Courage, Grace, and Support: The Story of Faith Banks
When Air Force pilot Raliene Banks learned her daughter Faith likely had Trisomy 13, her world shifted instantly. What followed was a journey of love, gut-wrenching decisions, grace, and a legacy that continues to touch families today. This full-length conversation is...
A Trisomy 18 Journey of Courage, Care, and Joy: The Story of Dane Sogge
When families first hear the diagnosis Trisomy 18, also known as Edwards syndrome, they often face a tidal wave of fear, medical uncertainty, and conflicting information. In this powerful SOFT Podcast episode, Jen and Steve Sogge—both parents and physicians—openly...
How SOFT Created the Trisomy 18 & Trisomy 13 Expectant Parent Books: A Deep Dive on the SOFT Podcast
How the Trisomy 18 and Trisomy 13 New and Expectant Parent Books Came to Life Families who receive a Trisomy 18 (Edwards syndrome) or Trisomy 13 (Patau syndrome) diagnosis often describe their first days as overwhelming — a moment when information feels contradictory,...









































