BLOGS
2024 Trisomy 18 Medical Panel – Expert Insights During Trisomy Awareness Month
As part of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) proudly hosted a medical panel dedicated to Trisomy 18 (Edwards syndrome). This recorded session features leading medical professionals who share the latest insights on diagnosis,...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
In recognition of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) was honored to host a special panel discussion focused on Trisomy 13. This expert-led session brought together leading medical professionals to share current insights, research...
SOFT Member Spotlight – Nika Pride
Embracing the Unexpected: Nika Pride’s Journey with NovaIntroduction For many parents, the diagnosis of trisomy 18 can be a life-altering moment, filled with uncertainty and fear. For Nika Pride, the unexpected news came after the birth of her daughter, Nova. In this...
SOFT Member Spotlight – Laura Horvath
Blossoming Through Adversity: Laura Horvath’s Trisomy 18 JourneyIntroduction In the world of rare genetic disorders, few conditions present as many challenges as trisomy 18. For Laura Horvath, a mother whose life took an unexpected turn upon learning of her daughter...
SOFT Member Spotlight – Starla Reese
A Journey of Strength and Devotion: Starla Reese and Hayli’s Trisomy 13 Mosaic StoryIntroduction Navigating life after a rare genetic diagnosis can feel like stepping into the unknown. For Starla Reese, the discovery that her daughter Hayli had Trisomy 13 Mosaic came...
SOFT Member Spotlight – Meredith Willard
One Day at a Time: Meredith Willard’s Journey with Rose and Trisomy 18Introduction When a parent first hears the words “Trisomy 18,” their world can suddenly feel unfamiliar and overwhelming. For Meredith Willard, learning that her daughter Rose had Full Trisomy 18...
SOFT Member Spotlight – Barb VanHerreweghe
A Lifetime of Advocacy and Love: Barb VanHerreweghe and Stacy’s Trisomy 18 JourneyIntroduction When Barb VanHerreweghe learned that her daughter, Stacy Lynn VanHerreweghe, had Full Trisomy 18, she was thrust into a world she had never heard of before. With no internet...
SOFT Member Spotlight – Angela Salazar-Beaugez
More Than a Diagnosis: Angela Salazar-Beaugez and Bella’s Journey with Trisomy 18Introduction When parents receive a trisomy diagnosis, the world often feels like it’s falling apart. For Angela Salazar-Beaugez, learning that her daughter Bella had Full Trisomy 18 was...
SOFT Member Spotlight – Gina Csontos
From Fear to Family: Gina Csontos and Mark's Trisomy 13 JourneyIntroduction Receiving a diagnosis of a chromosomal condition can turn a parent's world upside down. For Gina Csontos, the news that her son Mark had Partial Trisomy 13 was not just a medical revelation—it...
SOFT Member Spotlight – Susanne Josiah
Embracing the Unexpected: Susanne Josiah and Josiah Bishop’s Trisomy Journey Introduction Life often presents unexpected challenges, and for Susanne Josiah, learning that her son, Josiah Bishop, had Mosaic Trisomy 18 was one such moment. The diagnosis came with fear,...