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American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care

American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care

FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...

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Living With Trisomy 18:Choosing The ‘Life Narrative’ For Izzie

Living With Trisomy 18:

Choosing The ‘Life Narrative’ For Izzie

Introduction Families who receive a diagnosis like Trisomy 18 are often introduced to their child’s story through statistics, grim predictions, and assumptions about what life will—or will not—look like. Information is fragmented, perspectives are narrow, and hope is...

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