BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month Spotlight – Lani B
What is something unique and special about your child with trisomy that you wish more people knew? He was always HAPPY! His smile will light up the whole room. This babies are so special. Why do you believe raising awareness about trisomy conditions is important, and...
Trisomy Awareness Month Spotlight – Angela Rogers
What is something unique and special about your child with trisomy that you wish more people knew? She was fighter and touched so many lives. Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference? It is so...
Trisomy Awareness Month Spotlight – Linda Sedillo
What is something unique and special about your child with trisomy that you wish more people knew? Rubi smiles with her eyes, it's called smizing. She is always conveying true joy with her smile. Why do you believe raising awareness about trisomy conditions is...
Trisomy Awareness Month Spotlight – Ruth Mast
What is something unique and special about your child with trisomy that you wish more people knew? Tirzah had a cleft lip and palate, but a cleft specialist was able to find a bottle that would work for her mouth. She was so tiny but very precious and sweet, just a...
Trisomy Awareness Month Spotlight – Anne Jackson
What is something unique and special about your child with trisomy that you wish more people knew? Samuel loves to watch sports and go to plays. He always enjoyed being at church and going to school. He laughs so hard he cries and can’t catch his breath. He gives the...
Trisomy Awareness Month Spotlight – Haylee Hellwarth
What is something unique and special about your child with trisomy that you wish more people knew? Haddie is both sweet and sassy and full of sugar and spice! Her smile melts my heart every time and she has us all wrapped around her tiny little finger. Why do you...
Trisomy Awareness Month Spotlight – Claire Dequilla
What is something unique and special about your child with trisomy that you wish more people knew? Zara loves music, every time she hears music she will wiggle her head with a matching bright smile. She also love road trips, she's so happy everytime we have one, she...
Trisomy Awareness Month Spotlight – Tara Libby
What is something unique and special about your child with trisomy that you wish more people knew? She was a fighter, she was very active and almost fully grew, her little time we had with her felt like forever even though it was momentarily. She will forever be our...
Trisomy Awareness Month Spotlight – Alesha Gibler
What is something unique and special about your child with trisomy that you wish more people knew? Presley was our Super girl. She was the bravest most amazing little girl. She went through so much in such a short time. 83 days in the hospital Presley went through...
Trisomy Awareness Month Spotlight – Eunicel Reganit
What is something unique and special about your child with trisomy that you wish more people knew? As a nurse and a mother to my first born.. Trisomy 18 it's a chromosomal abnormalities and it's not curable.. this is not the fault of both parents.. baby with trisomy...