What is something unique and special about your child with trisomy that you wish more people knew?

Aaron loved his life! He was a happy, outgoing child who liked nothing more than being around people. While he endured difficult things, his demeanor quickly bounced back and would play. He loved music, outdoors, school, church and family. He loved to tease his brothers. He held all night parties with his nurses at home and in the PICU. Looking into his eyes, you could see signs of eternity, a deep love and knowledge. Around Aaron, you felt accepted, seen and loved. He brightened everyone’s life.

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

When we are open to possibilities, everything can change. just like any child with 46 chromosomes, those with 47 have a wide range of abilities and challenges. No two children are alike, and all have potential and the ability to influence others.

During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?

Aaron never spoke a word with his own voice, ran or even stood on his own. Yet this child improved the lives of people around the world, and especially his family. He fundamentally helped us become better people, more loving, closer, and more determined. If quality of life is measured by money or knowledge, he didn’t have any. If quality of life is measured by the joy you give and receive, no one had a better one.